Professional patient Archives | Page 2 of 6 | Rheumatoid Arthritis Warrior

Leaving It All on the Field: Not the Safest Choice But Maybe Best

Sightseeing, small steps, and sleep I’ve spent most of the last 3 weeks lying down with ice on my neck, or taking extra meds for the back spasms. The night before the FDA tofacitinib hearing, my back got so bad that I was about 90% certain that I would not be able to attend. My little...Continue reading      12 Comments » Read more

The Confusion of a Smile

If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I smile a...Continue reading      44 Comments » Read more

Rituxan Decision: Serving Humanity or Taking Care of the Patient (Me)

This is one of those rare posts about my personal medical journey, a Professional patient post. That’s kind of a warning in case I use the word “I” too many times to be polite. It’s crunch time. No one can decide but me. About a year ago I hit the end of the line with my rheumatology...Continue reading      116 Comments » Read more

Keeper or Loser: I’m Not Giving Up, But What Do You Think?

Warning: this is one of those rare personal posts specifically about my life, but I thought it was relevant to share. We have two endearing names for rheumatologists which I’ve coined over the years: rheum doc and The Wizard. Rheumatologists are the doctors who decide not to sneak out Osler’s infamous back door. I always give...Continue reading      141 Comments » Read more

The Mouse in My Pocket: We Are Not All Alone

RA can be Isolating. Even with loved ones, we might feel lonely because they don’t know what we’re going through. Our friends can’t visualize the ice-pick that’s stabbing us or appreciate what it’s like to move around in cookie dough all the time. Being alone is not all bad, but feeling cut-off sucks Being alone can be...Continue reading      31 Comments » Read more

Can We Find Similarities with Rheumatoid Arthritis?

Very often with Rheumatoid Arthritis, we emphasize our differences. It helps the newly diagnosed to get over the shock of living with a new symptom every day. It helps explain a fickle disease that is quite unreasonable and undemocratic in its attacks. But what about our similarities? Common threads and similarities in Rheumatoid Arthritis As Bob...Continue reading      53 Comments » Read more
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