Rheum Disease in the Media Archives | Page 2 of 5 | Rheumatoid Arthritis Warrior

Woman’s Day RA Is Destructive, but Phil & Venus Have Cred

July 9, 2012May 14, 2018 Kelly O'Neill 37 Comments Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem

In 2009, I first encountered something I called “the PR problem” with RA. For three years, I’ve disagreed with Woman’s Day magazine over whether the Woman’s Day version of RA is correct. On the blog, we’ve had discussions about various other fallacious articles on RA (some listed below). WebMD magazine offered a similar article last winter...Continue reading 37 Comments » Read more

Mind-boggling! – Aftermath of Tofacitinib FDA Hearing Part 2

May 25, 2012May 14, 2018 Kelly O'Neill 14 Comments Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem, XELJANZ-tofacitinib-JAK

After the FDA Arthritis Advisory Committee (AAC) hearing earlier this month for Pfizer’s new oral treatment for RA, tofacitinib, we looked at the four distinct votes of the AAC and some of the ways the media responded to them. They ranged from serious to pitiful to laughable. But there’s more. 3 news bytes that might...Continue reading 14 Comments » Read more

Aftermath of the FDA Vote on Pfizer’s RA JAK Inhibitor, Tofacitinib

May 15, 2012May 14, 2018 Kelly O'Neill 44 Comments Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem, XELJANZ-tofacitinib-JAK

After the tofacitinib FDA hearing, the votes are in, false perceptions persist, and patients still need relief. Some estimate that tofacitinib could be approved by the US FDA within a few months after mixed votes and mostly inaccurate press reports. It’s fitting this discussion takes place as rawarrior.com begins its fourth year of reporting the patient...Continue reading 44 Comments » Read more

Consumer Reports’ Absurd Best Buy Rheumatoid Arthritis Drug List

May 4, 2012May 15, 2018 Kelly O'Neill 47 Comments Biologics for RA, Rheum Disease in the Media, Rheumatoid Arthritis awareness

RESPONSE TO Consumer Reports Health Best Buy Drugs; Evaluating Prescription Drugs Used to Treat the Symptoms of Rheumatoid Arthritis: The Biologics Warrior to Washington: Next week, I’m going to D.C. to make an oral presentation to the “Arthritis Advisory Committee” at a hearing about a new Rheumatoid Arthritis treatment, tofacitinib. I want you to know why...Continue reading 47 Comments » Read more

The Confusion of a Smile

April 25, 2012May 15, 2018 Kelly O'Neill 44 Comments Professional patient, Rheum Disease in the Media, Rheumatoid Arthritis awareness

If you have RA, you’ll probably just nod your head as I share this private experience. If not, you may just scratch you head: huh? It’s all good, right? Well, mostly… I mean, a lot of living with RA is actually hard or disagreeable, but we smile anyway. What are you gonna do, right? I smile a...Continue reading 44 Comments » Read more

Lipstick & Luck: Feeling Fabulous with Rheumatoid Autoimmune Disease

December 12, 2011May 15, 2018 Kelly O'Neill 47 Comments Autoimmune diseases, Communicating about RA, Rheum Disease in the Media

If we try, will we feel fabulous with Rheumatoid Arthritis? Feeling and looking fabulous with RA sells well, but how much can lipstick help? Most people living with Rheumatoid Arthritis have felt the sting of someone suggesting we don’t need to be as sick if we would only try _____. Hearing this can seem harsh, especially...Continue reading 47 Comments » Read more

Kelly Young Wins WebMD Health Hero Award

November 13, 2011April 20, 2019 Kelly O'Neill 49 Comments e-patient, Patient advocacy, Rheum Disease in the Media, Rheumatoid Patient Foundation

WebMD magazine chooses Kelly as 1 of 4 “Champions of Care”! Look what I found on my dresser when we got home from Chicago last night! The new WebMD magazine with yours truly in it! You can click on the images to enlarge and read the text or read the story on the WebMD Health Hero honorees...Continue reading 49 Comments » Read more