Confusion surrounding rheumatoid disease is like a wall between those who have and those who have not – the disease. Where does this come from and what can be done?
Overcoming confusion surrounding rheumatoid disease
When I first started blogging about Rheumatoid Disease, I wrote about The Wall. In answer to an email from a good friend who wanted to know why I would “come out of the closet to blog about RA,” I explained I never meant to be in the closet about this disease. I was actually behind a wall. And then I explained why I believe The Wall around Rheumatoid disease exists:
Where the wall of confusion came from
Why the wall of confusion surrounding rheumatoid disease exists
Out of self-preservation, people with the disease naturally stop discussing it with others. Who wants to be insulted and dismissed? While they’re suffering the worst pain and weakness of their lives? Not me.
Of course, the blame for the wall lies with Rheumatoid disease itself for being mysterious, invisible, and surreptitious. After about four years of writing about it, reading research and talking to patients and researchers, I believe it is the most maligned and misunderstood condition. And the tremendous irony is that the disease is not rare.
Taking the wall down TOGETHER is doable!
Since I was very young, I think while I’m writing. And that’s what happened that day, May 20th 2009. I wrote out my approach to transcending The Wall, my goals for this site. You can read more about that on the RAW About page or in that original post.
POSTBLOG: In the past couple of years, I have seen those goals written elsewhere on other sites. I hope you know they came from my heart when I wrote them and if you see them on other sites, they were “borrowed” without my blessing.
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Read the post that started it all: Managing Rheumatoid Arthritis: Transparency and the Wall
- What If Rheumatoid Disease Were Recognized, Properly Funded & Medically Understood?
- What’s the Big Deal about Rheumatoid Disease?
- 76 posts about Rheumatoid Disease Awareness