Good News for Rheumatoid Arthritis Warrior | Rheumatoid Arthritis Warrior

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14 thoughts on “Good News for Rheumatoid Arthritis Warrior

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  • January 27, 2011 at 7:17 am
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    Congrats hon! I am so very proud of you! You are a wonderful voice for this illness.

  • January 27, 2011 at 7:33 am
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    Kelly you have been one very busy Warrior! Congratulations on the awesome accomplishments and continued work to get the word out about RA! I am very honored and proud to call you my friend.

  • January 27, 2011 at 8:35 am
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    kelly Thats all exciting news!..I knew you were destine to be Our voice of Rheumatiod! Bless you for doing this and being so forward thinking! I know you will speak for all of us! Im a cheerleader for you..go girl! Just remember to take care of yourself also..Much gratitude!

  • January 27, 2011 at 8:39 am
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    Kelly,

    What wonderful good news youu have shared!! Congrats on your appointment to the advisory board at Mayo – such an honor – you must be so happy!!!

    I am always talking about your blog and Facebook page to friends and family. I don’t know whether they check it out, I’d like to think they do. Thank you for all you have done!!!

  • January 27, 2011 at 9:01 am
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    So, so happy to hear all this GOOD NEWS! What a great honor for you and great news for us to have you on the Mayo Clinic Advisory Board! Thanks, also, for the update on the Women’s Day article–how nice to see how a little bit more knowledge can change attitudes, presentations and perceptions! The seminar about RA next week sounds great as well! On a snowy day in New England, we appreciate good news, and you made our day! Now I’m going back to read more details on the links you’ve provided….just wanted to send kudos to you first!

  • January 27, 2011 at 9:58 am
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    Here is some information about how to watch the webinar about RA on Feburary 1st. It sounds like you should start early or get your downloads ahead of time.
    —————————
    To join the session on the day of the meeting, please click on the following link up to 60 minutes before the scheduled meeting time:

    Enter your name at the Elluminate Session Log In box.

    https://sas.elluminate.com/m.jnlp?password=M.7912549745024A9F03F9E46768DD49&sid=2009293

    If you are using an assistive technology device such as Jaws please down load the JAVA Accessibility Bridge
    http://www.elluminate.com/support/java_accessibility.jsp

    PLEASE NOTE
    If this is the first time you will be using Elluminate, you may be prompted to download some software which may take anywhere from 2 to 20 minutes depending upon your Internet connection speed. You can pre-configure your system with the required software by going to the support page located at: http://www.elluminate.com/support.
    PHONE CONFERENCE BRIDGE

    For individuals who use a relay service or are having difficulty in hearing the audio, a phone conference bridge is available.

    Call: 1-866-689-2577
    Note: This is a toll free number no pin required.
    Dial into phone Conference Bridge, 5-15 minutes before start of the webinar:

  • January 27, 2011 at 10:11 am
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    Kelly- I’m THRILLED for you and your family! Patients everywhere have benefited from your service, and now will have so much more to gain by this “GOOD NEWS”! Justice has been served!!

    Bob

  • January 27, 2011 at 10:46 am
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    Thank you for this website. I have only been battling the real RA for a year and a half. The disease hit me hard causing a 30+ lb weight loss, constant fevers, fatigue, never ending pain, joint damage as well as a significant decrease in my usual activities and my social life. The one thing I have learned is to appreciate the really small things and that there are many people who battle much worse health wise with a smile on their face every day. Even my own husband does not really get it and it is wonderful to visit a site that does “get it”. Keep up the good work and if there is anything I can do to help you, please, please let me know.

  • January 27, 2011 at 5:06 pm
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    Congratulations, Bless you and Thanks for all of your hard work Kelly!

  • January 27, 2011 at 7:08 pm
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    How does one thank another for their selfless actions that benefit so many? Thank you.

    Congratulations Kelly~! Your wonderful voice for your dreadful disease (and ours) is now much louder and we are all thankful for it!

  • January 27, 2011 at 11:51 pm
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    Wow, this is all such fantastic news Kelly! Way to go!

  • March 3, 2011 at 1:18 pm
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    Did I tell you that the RAFit Kit is just a way to get people w/RA to go in and look at a biologic med? I wish I had asked my rheum back in Dec when I thought about it, I would have saved a lot of time answering a questionaire that didn’t give me a tailored workout. My Rheum said she flat out told the rep no, she wouldn’t put up an advertisement about it because it wasn’t right how they were trying to lure people into the information.

    • March 3, 2011 at 2:12 pm
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      Several other patients have said this too. I did get this impression from their commercial. I think that’s what motivated Tanya to show a reasoned approach.

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