I’ve been promising a good news list! Over the last couple of weeks, there has been good news for the Rheumatoid Arthritis Warrior community. I hope you’ll celebrate this good news with me. Any increase in the understanding of RA is good news for all of us. Likewise, any boost to the Rheumatoid Arthritis Warrior site is good news for all of us with RA.
Good news on writer of the Woman’s Day story on Rheumatoid Arthritis
Over the last couple of months, I’ve had some conversations with Judi Ketteler, writer of the infamous Woman’s Day piece on RA. Judi shared with me that she felt sick about how the article turned out. I believe that she regrets having relied upon a single source which was not a patient living with RA. She has a much different understanding of RA today. The conversations we had were private, but I wanted you to share the sense of delight that I have in knowing that one person has changed her mind and discovered the truth about RA, so I asked Judi for permission to share that with you.
Note: The editors at Woman’s Day continue to stand by the article as an appropriate portrayal of RA, based upon backing of the Arthritis Foundation. To my knowledge, they have not responded to any one of the hundreds of letters to the editor that they received about RA. You can watch my video response and get the address to write to them at this link – but read the rest of my good news first!
Good news: the Mayo Clinic Center for Social Media Advisory Board
Last week, I was invited to join the Advisory Board for the Mayo Clinic Center for Social Media. There will be some meetings to attend, both online and in person and some written contributions. It is a volunteer position that I’m glad to accept. Here is their news post if you want to read more about this board or the Center for Social Media itself. I’m thrilled about having an opportunity to work with people I admire so much – here is the list of the other members.
News on Rheumatoid Arthritis seminar featuring RA Warrior material
I got good news about a seminar about RA next week. The seminar itself is good news because of the focus of the research on patients’ lives and the presenter will be using a video from our RA Warrior YouTube channel, some quotes from this website, and portions of the post, 20 Things Not to Say to a Rheumatoid Arthritis Patient.
It’s good to know that Dr. Rebecca Bader understands the “real RA” as many patients call it. I look forward to hearing about her research focused on improving the lives of RA patients. The seminar will be broadcast via live webfeed. Go to this link at the Burton Blatt Institute to learn how to watch the feed. The following is an excerpt from the news release about the upcoming seminar on Rheumatoid Arthritis:
During a public seminar at noon, Feb. 1, …Rebecca Bader, assistant professor of biomedical and chemical engineering in the L.C. Smith College of Engineering and Computer Science, will provide her expert insight into how a combination of old information and new technology can be used to increase the quality of life of those with RA. Bader’s talk, “Old Concepts and News Insights in the Treatment of Rheumatoid Arthritis,” is sponsored by the Burton Blatt Institute (BBI) at Syracuse University. …Bader’s research was inspired by her aunt’s 41-year battle with RA, an autoimmune disease that causes chronic inflammation of the joints.
Good news: Tanya’s second Real RA Fit Kit video is here
Last month, we showed you how one of our readers created her own video showing realistic and safe ways to stretch with Rheumatoid Arthritis. Today you can watch her second video (below) about upper body strengthening. Whether or not you have RA or have the time or ability to exercise with Tanya today, her video is instructive. Of course you should ask your doctor before taking any exercise advice.
Some of you may have seen that AOL has re-posted a Health.com interview from last year that featured me. They did spin the story a bit, but it was undoubtedly good for a true Rheumatoid Arthritis story to be featured in the news. You’d laugh if you saw all of the “cures” that showed up in my email or the load of spam that landed on the blog. However, thousands of real patients and care givers also found RA Warrior through the AOL story!
- My RA Fit Kit – Rheumatoid Arthritis Exercise, Part 4
- General Practitioners Need Basic Rheumatoid Arthritis Information
- Woman’s Day Rheumatoid Arthritis Article: A Video Appeal
- Antibiotics as Rheumatoid Arthritis Therapy
This page was edited 1/30/2011 to add a link to the webinar mentioned.