HAPPY RHEUMATOID AWARENESS DAY 2014

RAD-ribbons-Julie

Rheumatoid Awareness Day (RAD) was yesterday February 2, but since the day fell on Sunday this year, the events continue this week.

Today at 11 a.m. EST, I’ll co-host a Twitter chat in honor of Rheumatoid Awareness Day with EveryDay Health. Click here to read more or see how to participate. The hashtag is #HealthTalk. AND tomorrow, February 4, I’ll be on WomensRadio’s Speaking of Health with Dr. B. for a live online radio interview. To listen, click here and then click on Speaking of Health.

   

RAD-2014-CB-matching-donationThe biggest impact you can still make is a donation, including a membership donation to the Rheumatoid Patient Foundation which will be DOUBLED by Crescendo Bioscience this week – click here to give now.

Rheumatology Network covered the day for healthcare professionals; you can read their story here. There were a few errors in the article, but it is still a good thing to get the word out to doctors who might not know yet that there even is an awareness day for Rheumatoid Disease.

On a personal note, it seemed a little silly to put Rheumatoid Disease in quotation marks, but I guess whoever did that (an editor?) was unaware that the term rheumatoid disease is not new and is used in various academic journals, and by many healthcare professionals. Click here to read about how I did not invent this ball – I just picked it up and ran with it!

Rheumatoid Awareness Day continues

Of course you can create your own event as many others have, but here’s a few ideas on how to participate –

RAD-breakrooms-posters-@ejprestonEric printed RPF awareness images and posted them at work. Others made jewelry or cut ribbons to wear. One person posted about handing out the Awareness Cards, and another brought RPF brochures to her doctor’s office. Please email me and tell us what you did so we can share it in a recap of this year’s events for others to be inspired.

Scroll through and read the 300+ comments on the Facebook Rheumatoid Awareness Day chat with Dr. John Davis – click here.

See the 50+ images people posted about Rheumatoid Awareness Day – click here. Or share your own image by uploading to Facebook or Twitter or emailing it to me kelly@ this website.

Check out the thousands of messages and images posted on Twitter #rheum for the awareness day – click here.

Thousands of stirring comments by people touched by Rheumatoid Disease: patients, family members, and caregivers. Be inspired by joining the Facebook event – click here.

RAD-Dr-Kirsch-tweet

Dr Chan says RD

Recommended reading

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

3 thoughts on “HAPPY RHEUMATOID AWARENESS DAY 2014

  • February 3, 2014 at 4:55 pm
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    Kelly, you may not have invented the ball but you’ve pushed it around and have it rolling now. I printed images from RPF and posted at work like Eric and also posted about it on my blog. I actually got more response from co-workers than from my blog … go figure. I have loosely planned to tour Alaska this summer on my motorcycle if it looks like my RA will cooperate. If that falls through I have a backup ride through New Mexico, Arizona, Utah and Colorado. Starting to question if Humira has run its useful course with me but hate thinking about changing meds again.

    Reply
  • February 4, 2014 at 11:19 pm
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    Hi Kelly I wonder in all the research and people you have talked to any info on stem cell research

    Reply
  • March 7, 2014 at 4:52 pm
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    I am really trying to find out the cost of Simponi? at least an estimate of what it costs in the United States.
    I am a US citizen living in Canada, I have RA and i have been on Simponi for a couple of years
    i am 100% back to my original self.
    We are thinking of moving back to the US but cannot get an answer on the costs.
    I would really need to know at least a ballpark fiqure before i consider the big move.
    Is it possible to find the cost?
    Thank You for this blog

    Reply

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