Kelly, I am so sorry this is happening to you. It’s bad enough to battle RD, let alone all the other stressors. I am so glad that your Uncle did start the Go fund me page and provides updates and gentle reminders. You have helped so many and I know that it helps me to return some assistance. It’s not equal to all you have done for me with your RA Warrior but, I hope it helps. Keeping positive thoughts for you and Roo.
If you have RA the best thing anyone can do is research the illness and every drug or so called cure. I have started to go after these so called idiots claiming they have cured RA . There is no cure for advanced RA you might be lucky and put mild RA in being dormant but it will come back to haunt you I know. I am tired of old and young individuals being coined in especially on youtube and twitter and other social networks being to believe these idiots of cures. Trust only a good rheumatologist as they know what they’re talking about,
mine is a professor at McMaster medical university and a good friend.
That it for now.
JOHN MAJOR
Kelly, you’ve been in our minds so much since we last got a post from you…..so sorry that this nightmare is continuing for you–both the emotional and the physical!! We will be praying for a quick and positive outcome for you when the court completes all the red tape that courts have to go through–and their clients too! We will help in any way we can, and please call on us if any other need arises. If any court in the world thinks that RA is a “comfortable ” and short illness that can be overcome with an aspirin, then call on all your Warriors to send in the essays we have all written through the years–on RA frustrations, the pain, the emotional , the financial and job-related and social-related hardships RA patients go through daily and yearly! Many warriors can write full-length novels on their experiences! Hugs from all of us to all of you! We care about you and love you!! Vi
Dear Kelly,
I will pray for you and Roo and yes you do have a right to cry. If I’d had to go through fighting a battle for my son along with RD I’ve no doubt that hurricane force of warrior battle strength would be necessary. We warriors here know when the disease rears it’s ugly head there’s no stopping it for it does not ask permission to do whatever it wants to our body and mind.
I pray for Hurricane Force Warrior Strength for you Kelly. On the harder days may you feel Jesus carry you until your ready to go again. You both shall remain in my prayers.
Right now, our home computers are konking out on us without notice….so, connection could be stopped halfway through our attempt at donation……actually, our computers are fine, but Verizon can’ t fix their problem at their end…..so, we will be changing to a different system in a week, and we will send an online donation at that time….we don’t want to lose a connection midway in the donation process…..such a bummer! Just wanted to let you know that we’re thinking of you–always! (hope this gets through before the connection gets lost again!) Hugs!
Kelly, My traumatic divorce when my children were 9,7, and 4 cosst me loss of my house, many of my possessions, my car and finally threw me into bankruptcy. Had it not been for friends from work, I could not have made it. My mother died a year later – of RA complications. Himself, at that time a dear friend, helped me more than I can say. I did not, at that time, have RA. I don’t know if I could have survived if I had had to deal with our VILE disease at the same time. My heart is going out to you. I was attacked by my ex-h on every side. I lost my church and most of my friends – because they went to my church. [He went through 2 more wives and another woman before he died in 2015.] We lived like paupers for 2 years. After Momma died, I accessed enough money to make the down payment on a house. But the RA was raising it’s ugly head. This was in the 70’s. Nothing available for treatment except pred. I was sero-negative, and couldn’t get treatment at that time. It was nearly 30 years later that I converted to a positive RA factor.
All this is to say, I know much of what you are going through, and I believe I understand most of the rest. If there is ANYTHING I can do, please let me know. Living 800 miles from you limits me, but I could do little things – find articles about RA in medical journals, etc. I’m sure you have your own sources, but maybe I can find some relevant items for you.
You know your Blog Carnivals? What about a carnival of articles for RAWarrior? That might help keep RAWarrior going when you are otherwise occupied with legal or medical issues.
Just a few ideas that might help. You KNOW my prayers are with you, and that our love for you is with you, also. When you are just sure you can’t do anything more, let yourself take one or two or five “down” days and recover. And let your fellow warriors help out.
Your love means so much to us Elizabeth. I know I’ve shared some with you, but I wish I could write about everything that’s happened, maybe someday, I believe it would help others. I worry about what I write down publicly for many reasons such as my kids’ future privacy.
We have a lot in common. As you know I’ve only had pred or advil to help me either because nothing else helps. Other things I’ve tried just make things worse. And no “flares” since 2006 – just 24-7 worsening rd in every joint. So ridiculous you can only try to laugh.
I can’t “handle” it either as you say – I am trying to survive it. It means so much to know I have friends like you because I have lost so much to try and help Roo. Funny you’d mention church – I’m thinking about a blog post relating to that. We have our own church of course, but isn’t the church in general strange on this issue of abuse?
Feel free to let me know if you have article links – at least I can use them on FB if I don’t have time to write posts about them all. But I’m trying to do some.
I just feel that i have to write this post. I was diagnosed approx. 15 yrs ago with RA. I have used omega XL for at least 6 years which worked well for me, until i started getting palpitations, then i had to stop taking it. I am so afraid of all the serious side effect that RA drugs cause, i will not take them. Oh my doctor prescribe them, i just would not take it;trust me i had the morning stiffness, joint swelling and pain for which i used Motrin 600mgs daily,my doctor wants me to take it three times a day.
I started looking for natural herbs that i can use to help reduce the swelling and pain.I came across ginger root and turmeric which i am currently using, Wow! what a difference, my pain and swelling of my joints have decreased significantly, every other day i will 200mgs of Motrin due to a little pain in my knees, and it helps me great deal. I buy the real ginger root, grate it,and pour boiling water cover for half to an hour, then drink it three times a day, the last cup at night i add a quarter tsp. of turmeric power.it helps me a great deal. I also take my Vit. D supplement, and, Nutritionally i make sue that i am getting all my vitamins, i do so by juicing green leafy veg three time a week. Please read up on uses of ginger and turmeric. this is my story. By no means am i telling you to stop taking your medication, i am just sharing my journey with managing RA
Misunderstood mess – how true!
Exhausted of trying to explain it all – I think we all have bigger fish to fry especially you Kelly.
Prayers for you and Roo.
Prayers for you and your family. RA is enough, on its own. I have been diagnosed with RA for about 4 years. Of course, I probably had it longer but it took until then for all the tests to tell the doctors that it wasn’t “womens” issues…I see my RA doc every 4 months. I am on my 5th biologic drug….and it’s not working, but I’m not giving up. Never give up.
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Kelly, I am so sorry this is happening to you. It’s bad enough to battle RD, let alone all the other stressors. I am so glad that your Uncle did start the Go fund me page and provides updates and gentle reminders. You have helped so many and I know that it helps me to return some assistance. It’s not equal to all you have done for me with your RA Warrior but, I hope it helps. Keeping positive thoughts for you and Roo.
If you have RA the best thing anyone can do is research the illness and every drug or so called cure. I have started to go after these so called idiots claiming they have cured RA . There is no cure for advanced RA you might be lucky and put mild RA in being dormant but it will come back to haunt you I know. I am tired of old and young individuals being coined in especially on youtube and twitter and other social networks being to believe these idiots of cures. Trust only a good rheumatologist as they know what they’re talking about,
mine is a professor at McMaster medical university and a good friend.
That it for now.
JOHN MAJOR
God bless you both. You’re in my prayers.
Kelly, you’ve been in our minds so much since we last got a post from you…..so sorry that this nightmare is continuing for you–both the emotional and the physical!! We will be praying for a quick and positive outcome for you when the court completes all the red tape that courts have to go through–and their clients too! We will help in any way we can, and please call on us if any other need arises. If any court in the world thinks that RA is a “comfortable ” and short illness that can be overcome with an aspirin, then call on all your Warriors to send in the essays we have all written through the years–on RA frustrations, the pain, the emotional , the financial and job-related and social-related hardships RA patients go through daily and yearly! Many warriors can write full-length novels on their experiences! Hugs from all of us to all of you! We care about you and love you!! Vi
Dear Kelly,
I will pray for you and Roo and yes you do have a right to cry. If I’d had to go through fighting a battle for my son along with RD I’ve no doubt that hurricane force of warrior battle strength would be necessary. We warriors here know when the disease rears it’s ugly head there’s no stopping it for it does not ask permission to do whatever it wants to our body and mind.
I pray for Hurricane Force Warrior Strength for you Kelly. On the harder days may you feel Jesus carry you until your ready to go again. You both shall remain in my prayers.
Right now, our home computers are konking out on us without notice….so, connection could be stopped halfway through our attempt at donation……actually, our computers are fine, but Verizon can’ t fix their problem at their end…..so, we will be changing to a different system in a week, and we will send an online donation at that time….we don’t want to lose a connection midway in the donation process…..such a bummer! Just wanted to let you know that we’re thinking of you–always! (hope this gets through before the connection gets lost again!) Hugs!
Kelly, My traumatic divorce when my children were 9,7, and 4 cosst me loss of my house, many of my possessions, my car and finally threw me into bankruptcy. Had it not been for friends from work, I could not have made it. My mother died a year later – of RA complications. Himself, at that time a dear friend, helped me more than I can say. I did not, at that time, have RA. I don’t know if I could have survived if I had had to deal with our VILE disease at the same time. My heart is going out to you. I was attacked by my ex-h on every side. I lost my church and most of my friends – because they went to my church. [He went through 2 more wives and another woman before he died in 2015.] We lived like paupers for 2 years. After Momma died, I accessed enough money to make the down payment on a house. But the RA was raising it’s ugly head. This was in the 70’s. Nothing available for treatment except pred. I was sero-negative, and couldn’t get treatment at that time. It was nearly 30 years later that I converted to a positive RA factor.
All this is to say, I know much of what you are going through, and I believe I understand most of the rest. If there is ANYTHING I can do, please let me know. Living 800 miles from you limits me, but I could do little things – find articles about RA in medical journals, etc. I’m sure you have your own sources, but maybe I can find some relevant items for you.
You know your Blog Carnivals? What about a carnival of articles for RAWarrior? That might help keep RAWarrior going when you are otherwise occupied with legal or medical issues.
Just a few ideas that might help. You KNOW my prayers are with you, and that our love for you is with you, also. When you are just sure you can’t do anything more, let yourself take one or two or five “down” days and recover. And let your fellow warriors help out.
Love
Elizabeth
Your love means so much to us Elizabeth. I know I’ve shared some with you, but I wish I could write about everything that’s happened, maybe someday, I believe it would help others. I worry about what I write down publicly for many reasons such as my kids’ future privacy.
We have a lot in common. As you know I’ve only had pred or advil to help me either because nothing else helps. Other things I’ve tried just make things worse. And no “flares” since 2006 – just 24-7 worsening rd in every joint. So ridiculous you can only try to laugh.
I can’t “handle” it either as you say – I am trying to survive it. It means so much to know I have friends like you because I have lost so much to try and help Roo. Funny you’d mention church – I’m thinking about a blog post relating to that. We have our own church of course, but isn’t the church in general strange on this issue of abuse?
Feel free to let me know if you have article links – at least I can use them on FB if I don’t have time to write posts about them all. But I’m trying to do some.
I just feel that i have to write this post. I was diagnosed approx. 15 yrs ago with RA. I have used omega XL for at least 6 years which worked well for me, until i started getting palpitations, then i had to stop taking it. I am so afraid of all the serious side effect that RA drugs cause, i will not take them. Oh my doctor prescribe them, i just would not take it;trust me i had the morning stiffness, joint swelling and pain for which i used Motrin 600mgs daily,my doctor wants me to take it three times a day.
I started looking for natural herbs that i can use to help reduce the swelling and pain.I came across ginger root and turmeric which i am currently using, Wow! what a difference, my pain and swelling of my joints have decreased significantly, every other day i will 200mgs of Motrin due to a little pain in my knees, and it helps me great deal. I buy the real ginger root, grate it,and pour boiling water cover for half to an hour, then drink it three times a day, the last cup at night i add a quarter tsp. of turmeric power.it helps me a great deal. I also take my Vit. D supplement, and, Nutritionally i make sue that i am getting all my vitamins, i do so by juicing green leafy veg three time a week. Please read up on uses of ginger and turmeric. this is my story. By no means am i telling you to stop taking your medication, i am just sharing my journey with managing RA
Misunderstood mess – how true!
Exhausted of trying to explain it all – I think we all have bigger fish to fry especially you Kelly.
Prayers for you and Roo.
Prayers for you and your family. RA is enough, on its own. I have been diagnosed with RA for about 4 years. Of course, I probably had it longer but it took until then for all the tests to tell the doctors that it wasn’t “womens” issues…I see my RA doc every 4 months. I am on my 5th biologic drug….and it’s not working, but I’m not giving up. Never give up.
Thanks Carol. You’re right – we must not give up.