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Thank you! Thanks for your blog, for your insight, for your efforts in bridging the communication gap between patient & doctor. This is the FIRST place that I’d actually found a kindred spirit – someone who was going through the same things as me and “looked” healthy. You’ve made me realize that the dr. may NOT be wrong with the diagnosis I’ve received. Sending this w/much love & gratitude!
Thanks, Sonya. I’m sorry we have the same problems, but I’m glad we can have that “kindred spirit.” Good luck to you. :rainbow:
Thanks so much for sharing this.
Healthcare professionals may be experts in disease states, but empowered patients are experts in living with that disease – and may well have read widely and deeply across the literature too.
Their relationship should be a fully participatory, democratic partnership. Anything short of this is not fit for purpose.
It is the ideal, but it must also become the reality.
Andrew,
Thank you. Somehow hearing you say it increases to my determination.
I didn’t set out to become “empowered,” but to be treated. However, it was not as simple as it should have been. Now, I’m determined to help others be treated properly as well.
Kelly, did you ever get a response from this Dr? I hope so for I would love to hear his answers!
I am a newly diagnosed RA patient and start my first dose tonight. Do you know what the standard dosing is for a beginning dose. I have to take (4) 2.5mg pills once a week. Is this a high starting dose?
Thank You,
Jay
No this is a common starting dose. Best of luck to you!