Email a copy of 'Rheumatoid Awareness Day 2016' to a friend
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E-Mail 'Rheumatoid Awareness Day 2016' To A Friend
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Number 1 and 7 resonate the most with me. Newly diagnosed this past month, my husband and I are going to my first follow up appt this Friday. Both number 1 and 7, we are discovering, learning, accepting, and incorporating into our lives. Number 1 is what I’m starting to share with others, while I keep Number 7 in mind for their follow up questions and suggestions. Numbers 1 and 7 are the bookends to most conversations about rheumatoid that we will have.
I got my pin yesterday, thank you! I am wearing it proudly today.
thanks Stacy. This is our first awareness item on Amazon & it’s brand new. When you have time, can you please post a review there saying the same?
5# Even family has a hard time with this. I think we make it harder on ourselfs because most try and keep a good attitude. Not acting like we really feel. Kelly praying for you.
Two years into my diagnosis, I would say 1, 3 & 6 resonate the most with me. I’m still learning about RD & it is difficult when it is so different for each person. The medicines used to treat the disease are scary, I haven’t yet found a doctor I’m really confident in and I understand how difficult it is from their perspective when there are so many variables to deal with for each patient. I can only hope that I’m going in the right direction with my treatment because the long-term outlook with RD is enough to make me really worry about my future & my family’s future.
Number 1! My joints appear totally normal and have not suffered damage (for this I consider myself very fortunate). Yet, most doctors evaluate my disease mainly by looking at my joints. This feels to me as though my ongoing pain and fatigue, lung and cardiovascular nodules or scar tissue (they’re not really sure), and many other systemic symptoms don’t matter or count, and I should somehow be functioning like a person who is completely well. I am definitely more able than I would be if the joints were constantly flaring. But for my particular version of RD, as I always say to doctors and friends, my joints are the least of my troubles. I struggle to keep up with normal everyday demands as a parent, even while off work for years, and need lots of extra rest. Managing my health feels like a full-time job of it’s own much of the time. I’m fortunate in the grand scheme of life with RD but would love to see widespread understanding of all of its evil effects aside from joint swelling, joint pain and joint damage. Thanks for all you do for all of us! (My ‘blog’ has never gotten off the ground. I’ve never had the extra time and energy you make it happen. I don’t know how you do it! Someday… ?)
PEOPLE SHOULD REALIZE THAT RHEMATOID ARTHRITIS CAN KILL A PERSON REALY FAST IF THEY ARE NOT EDUCATED ON THE FACTS OF THIS DEADLY DISEASE.
OSTEOARTHRITIS WILL CRIPPLE YOU AS IT EATS AWAY AT THE CARTLIDGE THEREFORE REQUIRING JOINT REPLACEMENT.
I AM THE WORST CASE HISTORY RECORDED IN THE MEDICAL FIELD WITH RHEMATOID ARTHRITIS.
LOOK AT MY WEBSITE AND READ MY BIO
JOHN MAJOR https://youtu.be/ry4_UaK-HmE
http://myevent.com/savejohnslegandbody.
KELLY
I HAVE STAYED QUITE ABOUT RHEMATOID ARTHRITIS FOR YEARS BUT NOW I AM GOING TO TRY AND EDUCATE PEOPLE ABOUT THIS DEADLY DISEASE.
IT HAS PUT ME ON MY DEATH BED 4 TIMES AS I HAVE BEEN THROUGH OVER 50 DIFFERENT SURGERIES.
I HAVE BEEN ASKED TO WRITE A BOOK O MY PAST EXPERIENCE BUT I AM NOT VERY CAPABLE OF DOING IT.
I WOULD RATHER WATCH SOMEONE LIKE YOU DOING THE GOOD WORK KEEP IT UP.
JOHN MAJOR
I blogged on #1. http://carolinemfr.blogspot.com/2016/02/rheumatoid-awareness-day-not-arthritis.html