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When I open the “Press Release”, only part of it can be seen.
Systemic here! Diagnosed with Rheumatoid Lung one year ago. It was a total game changer.
Reading this post today is so timely for me. I recently went to a doctor’s appointment and felt a lot of the insecurities that you mentioned, not wanting to make a big deal about how I’ve been feeling. I wrote about it here: http://www.autoimmunediseaseliving.com/2017/01/27/the-miracle-of-a-doctors-appointment/
It is so hard to talk about the different symptoms we experience. Even so, I appreciate your encouragement to take it seriously. This is a serious disease!
Yes I definitely have systemic features. My heart rate is high, my brain has been inflamed at one point. I’m also have autoimmume liver disease.
Dear Kelly – I am very sorry to hear that you now are dealing with this further development. I hope you get the best medical care available. You have the support and prayers of all of us i’m sure. RA is most certainly systemic not to mention hetergenous. Thinking of you. ❤
thank you so much Catherine.
I have had periods where I suddenly develop a heart murmur when inflammation levels go back down it goes away. The problem is Dr doesn’t want to add or change meds to lower inflammation while my heart is acting up and it takes a while to go down on its own. I also have had inflammation of my skin tissue under the surface, no rash but it just hurts to touch. Has anybody else experienced the skin issues?
Yes Summer. You’re not alone. As for me, skin related issues – vasculitis (inflamed blood vessels), vitiligo (missing pigment), bright red rashes in the beginning, itching from side effects and liver problems, and finally bleeding under the skin.
Did you go to the dermatologist?
No I haven’t been to a dermatologist just went to my primary. She really listens and helps more than any of the other specialists I have been to. I also have had problems with my liver because of the meds. Didn’t realize the skin itching was part of that though thanks.
I’ve tried to act “normal” for over 5 years while battling this disease but two weeks ago realised that’s no longer an option. RA has caused so many problems with my lifestyle and body. I now have degenerative disc disease, bursitis and recently have developed fibromyalgia. Seriously enough is enough!
I’ve delt with RD most of my life. Discovered accentdently,@52 I have Celiac. That in itself changed so much for the better!! As I write this, I’m 60, I’ve developed forefeet issuses,( learning to walk Barefoot all over again) head,neck, worse hand pain. I was searching for my newest symptoms because of my eyes, feet, & voice and discovered your site! Put the connections together. So I thank you for the time and effort! I have a hard time typing for a long time, so I do not know how you do it! So I thank you and commend you for that!! And I could write so much more but the reason besides thanking you, I really want to share this..
I had been self-medicating with THC Edibles and medicinal Vape oil for a long time. I had to quit 4 weeks ago. I now feel like I just want to die. And I really thought the issues I was searching for were separate. Wow, just wow.
I know as soon as I can I am moving out of the state I live in. If I want to live a productive life. I know it was the medication I was giving myself that made it so I could do so much!! I stay very active no matter what. I have to!
We are a self-funded fur kid shelter we have about 20 currently. I also am Nonna to 15 & 3 new great grandchildren. I have to keep going for them.
It cannot be coincidence that I’m in this bad of shape in such a short amount of time. My knee even went out and collapse about 6 years ago I woke up one morning and couldn’t walk and never have had surgery. I fought my way through, even after seeing the orthopedic doctor. He is awesome. 🙂 He is about to retire though 🙁 I’m going to have to find another one. But I’m going to find that one in another state. I hate Pharmaceuticals I’ve been looking at all the meds all of you talked about. I do not want to deal with all the possible side effects. I do take all the over the counter nsaids, just alternately.
Thank you for your time, please think about this.
Blessed Be all of us.
Peace love joy and Hope,? Kim