Positive Signs for Rheum Patient Activism

May 26, 2011May 15, 2018 Kelly O'Neill 4 Comments e-patient, Health care social media, Patient advocacy, Rheumatoid Patient Foundation

Seeing is believing: rheum patient activism Last Friday, a meeting of the Emirates Society for Rheumatology (ESR) in Abu Dhabi heard a presentation from Katrina Thornley who has had Juvenile Rheumatoid Arthritis (JRA) for 27 years (since age 2). Dr. Mustafa Al Maini, President of the ESR, comparable to our ACR (American College of Rheumatology), called...Continue reading 4 Comments » Read more

Rheumatoid Arthritis Swelling, Take Two

May 23, 2011May 15, 2018 Kelly O'Neill 152 Comments Frying Pan Posts, Health care social media, Rheumatoid arthritis remission

Rheumatoid Arthritis Swelling (UPDATED 2016) In honor of the blog’s 2nd birthday, let’s consider some issues that have been significant over the last two years. Today we’ll consider Rheumatoid Arthritis swelling. This may be blunt. More like a frying pan than a sword. Talking turkey on Rheumatoid Arthritis swelling A couple of years ago my kind-but-clueless-what-to-do-next (her word)...Continue reading 152 Comments » Read more

Reliable Sources: Orencia Cough Side Effect & Notions of e-Patients

March 22, 2011May 15, 2018 Kelly O'Neill 64 Comments Biologics for RA, e-patient, Health care social media, Orencia (abatacept), Side effects for RA medicine

If I cited a percentage of patients who get a cough from Orencia, then I’d quote a source – probably a clinical trial. However, if I merely say, as a patient, that Orencia gave me a cough, then that is a firsthand experience and that’s another type of credible source for other patients. Diabetes blogger Kelly...Continue reading 64 Comments » Read more

Alice Goes to Jacksonville: Mayo Clinic Center for Social Media

March 17, 2011May 15, 2018 Kelly O'Neill 11 Comments e-patient, Health care social media, Pain Tolerance / RA Stoicism, Patient advocacy

What’s the Mayo Clinic Social Media Health Network? I joked a lot about Alice in Wonderland this week as Katie Beth and I traveled to Jacksonville for the first meeting of the Advisory Board for the Mayo Clinic Center for Social Media (MCCSM). It was combined with a conference for members of Mayo Clinic’s new Social...Continue reading 11 Comments » Read more

Health.com Replies to RA Warrior

March 10, 2011May 15, 2018 Kelly O'Neill 31 Comments Health care social media, Patient advocacy, Professional patient

An editor at Health.com sent this message to me and my readers as a response to my post Three Things Not to Say about Plagiarism to a Blogger. She did not claim to speak for the writer. Please see my response below. I’m the Health.com editor who worked on this story, and I just got off...Continue reading 31 Comments » Read more

Three Things Not to Say about Plagiarism to a Blogger

March 4, 2011May 15, 2018 Kelly O'Neill 55 Comments e-patient, Health care social media, Patient advocacy

1) Oh, that’s just flattery, they like your writing. 2) Well, at least the message is getting out. 3) Don’t say anything because that will make you look bad. All of these have been said to me. And I’m not buying it. Click image to enlarge. My regular followers know that for I’ve been typing away about Rheumatoid Arthritis on...Continue reading 55 Comments » Read more

Patient Stories May Provide Real Help via Social Media

February 14, 2011May 15, 2018 Kelly O'Neill 7 Comments e-patient, Health care social media, Profiles in courage with RA

70 Patient stories on RA Warrior Today we add eight new stories to the RA onset story pages! Patients tell their own stories of how their Rheumatoid Arthritis developed and how they found a diagnosis. There are currently 70 Rheumatoid Arthritis patient stories on this site. There are 3 reasons I created these pages: I found other...Continue reading 7 Comments » Read more

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