About Rheumatoid Arthritis Warrior: News Flare | Rheumatoid Arthritis Warrior

About Rheumatoid Arthritis Warrior: News Flare

Hall of Fame Game 08

I thought News Flare was more appropriate than News Flash.

Some important RA Warrior updates

First, I’m happy to show you that yesterday, an RA news article by yours truly was published on HCP (Health Care Professionals) Live. The topic is one that will be close to our hearts. I wrote that unless there can be early Rheumatoid Arthritis diagnosis, there cannot be “early and aggressive” Rheumatoid Arthritis treatment.

Second, I hope you haven’t missed out on the new Bulletin board page (click the blue push pin button). It’s just what it sounds like: a place for me to put things I find that are “must see,” whenever you get time. Not everything on that page will be related to the Rheumatoid Arthritis cause. If I think it’s important or it will make you smile, that’s enough.

Third, there are big technical problems with the blog. Yesterday, I had a conference with an expert who volunteered an advice session.  As he had warned me, there was bad news. Apparently, to Google, my website appears as the proverbial needle in a haystack. Or needle in an RA’ers bathroom maybe.

There are a few more “issues,” but you get the idea. I guess it doesn’t do any good for me to be well adjusted. I still have a blog with “issues.”

Fourth, the blog has recently been accepted by BlogHer for their scrupulous ad program. This is actually a complement to the site and we are hoping it will be a positive move. Any ad revenue will help to offset operation costs. Hopefully, the blog will eventually be self supporting. This page will tell you more about advertising on RA Warrior. If you don’t have anything to advertise, we are also equipped to take donations.

Finally, I am more grateful than I can ever explain to you for the support and encouragement that I have received these past few days. If you missed yesterday’s post, I hope you’ll read it when you get a chance. I’m hoping that the peek behind the scenes helps us all. One day at a time.

Recommended reading:

Kelly O'Neill Young

Kelly O'Neill (formerly Kelly Young) has worked over 10 years as an advocate helping patients to be better informed and have a greater voice in their healthcare. She is the author of the best-selling book Rheumatoid Arthritis Unmasked: 10 Dangers of Rheumatoid Disease. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. She is the president of the Rheumatoid Patient Foundation. Through her writing and speaking, she builds a more accurate awareness of rheumatoid disease (RD) aka rheumatoid arthritis (RA) geared toward the public and medical community; creates ways to empower patients to advocate for improved diagnosis and treatment; and brings recognition and visibility to the RA patient journey. In addition to RA Warrior, she writes periodically for newsletters, magazines, and websites. There are over 60,000 connections of her highly interactive Facebook page. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She created the hashtag: #rheum. Kelly is a mother of five, longtime home-schooler, NASA enthusiast, and NFL fan. She has lived over thirteen years with unrelenting RD. See also https:/rawarrior.com/kelly-young-press/

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13 thoughts on “About Rheumatoid Arthritis Warrior: News Flare

  • December 9, 2009 at 8:53 am
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    Hi Ms RAW,
    I’ve been dealing with RA for 11 years now. I’ve just got juiced recently (Orencia) and feel not much different than usual, 6-8+/10 pain scale, been on Orencia for over a year.
    I don’t complain about my pain unless asked and then I minimize it to people, my kids and girlfriend know the truth and others figure it out when they see the me trying to open a car door with two hands and my elbow sometimes. I can feel rain starting in the Amazon forest from Mass.

    My Rheum told me there’s another IV RA drug slated to come out in the spring for those who are seeing diminished results from current therapies.
    I always tell myself there’s someone worse off when “those days” hit.
    Like the site!
    Sincerely,
    Bob

    Reply
    • December 9, 2009 at 10:08 am
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      Bob, you are so funny. Love the “juiced” thing – I live in Florida so we think it sounds like Valencia (a popular variety of orange).

      Love the Rainforest thing too… I appreciate your hopeful & fun comments.

      Sorry you hurt so bad. Why do we have to hide it as if its something of which to be ashamed? I do know what you mean; I’m just wondering out loud… Almost everyone tells me that.

      Reply
    • December 9, 2009 at 11:59 pm
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      I am with Bob, that says it is all about RA *Those Days*

      Reply
  • December 9, 2009 at 9:35 am
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    Congratulations on being published on HCP. You wrote a very good article – I sure hope it makes a difference in what doctors recognize as possible early RA symptoms!

    Reply
    • December 9, 2009 at 10:10 am
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      Warm,
      Thanks much for noticing (& reading!) my article. I was very pleased at the opportunity. Part of my long-term goal has been to begin to influence the way GP’s view patients regarding RA.

      Reply
  • December 9, 2009 at 2:46 pm
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    Great article on HCP! I want to print it out and send it to my GP who ignored my early symptoms.

    Reply
  • December 9, 2009 at 5:37 pm
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    I like everything about this but your choice of shirt

    Reply
  • December 10, 2009 at 2:52 am
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    CONGRATS on being published in HCP! I am so proud of you!! Also, have you heard the new info on Chicken cartilage? I don’t know if it is going to be like those other “all natural cures” that pour your money down the drain. Also, I started taking Limbrel 500 which is a medical food product for OA but apparently doesnt have the side effects GI wise that NSAIDS have which caused my ulcer. Some people get gassy and the runs from it but so far none of that for me. I don’t notice a diff in pain or flexibility but then again we have been in a snow storm for two days and now heading to negative 30 tonight so the fact that I am not crying from pain I suppose is a feat. Anywho just passing along the newest info I have come up with. Sending my love to you and your family. Congrats again, I am so proud of you and all of your accomplishments. Best of luck on your blog surgery. I know someone who may be able to help, I will contact him and see if he would like to “do a favor” he builds computers and can do anything computer related. He is brilliant with the computers.

    Reply
  • December 10, 2009 at 2:51 pm
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    Great article on HCP, Kelly. Congratulations!

    Reply
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