Kelly O'Neill, Author at Rheumatoid Arthritis Warrior | Page 32 of 118

Author: Kelly O'Neill

Helping the Healthcare World Understand Rheumatoid Disease

Kelly O'Neill 23 Comments , ,
The “don’t-miss-the-plane” rush is on. My suitcase is half packed. I have a fever and I’m not washing my hair today because my wrist can’t muster it. Yet, I’m going to get on that plane to D.C.! Why all this bother? I’ve received messages from thousands of precious people telling their stories and how this website...Continue reading      23 Comments » Read more

Rheumatoid Arthritis Drug Approved by US FDA: Pfizer’s Xeljanz Pill (Tofacitinib)

Kelly O'Neill 35 Comments ,
For over two and a half years, we’ve followed Pfizer’s tofacitinib through clinical trials for FDA approval. Today, the U.S. FDA approved the new drug that will be called Xeljanz. Click here to read the full Pfizer press release for Xeljanz.   The first JAK for Rheumatoid Arthritis approved: “Xeljanz” The U.S. Food and Drug Administration (FDA) announced...Continue reading      35 Comments » Read more

Pfizer’s Rheumatoid Arthritis Pill Approved by Food and Drug Administration (FDA)

Kelly O'Neill 7 Comments ,
Note: Click here to read more about Xeljanz, the first new oral medication for Rheumatoid Arthritis in 10 years, and a short list of questions and answers for patients. Sign up for regular blog updates by email to watch for more updates on this new treatment and others. Pfizer press release about Xeljanz NEW YORK--(BUSINESS WIRE)--Pfizer...Continue reading      7 Comments » Read more

Groceries, Guilt, and Feeling Old from Rheumatoid Disease

Kelly O'Neill 70 Comments ,
At our family get-togethers, people tell jokes about how we’ll always be “Young.” I stopped telling those jokes a few years ago. And I think I just figured out why. Rheumatoid disease makes me feel old. It’s not the wrinkled brow from unspoken pain. Or the pale spotty skin in place of my former perpetual tan. Or...Continue reading      70 Comments » Read more

Surgery, Stories, and Feet amid Stubborn Rheumatoid Disease

Kelly O'Neill 35 Comments ,
One thing I wish every day is that everyone in the world could read the priceless emails from other warriors I receive every day. If everyone treating or researching this disease could read them, comprehension of the disease and care for it would improve. Family members could have greater understanding. Employers and friends could begin...Continue reading      35 Comments » Read more

PCORI – Creating a Culture for Patient-Centered Research

Kelly O'Neill 11 Comments , ,
Note! For more snapshots including the posters summarizing the PCORI workshop - click here. This weekend I attended a PCORI workshop called Transforming Patient-Centered Research: Building Partnerships and Promising Models. I’ve watched some PCORI meetings in the past since they use live stream webcasts to provide transparency. Here are some of my impressions regarding the weekend...Continue reading      11 Comments » Read more

Invisible Illness Awareness Video

Kelly O'Neill 6 Comments , , ,
Positively Real: Keeping the Discussion Real without Sugar Coating Everyone with an “invisible illness” owes such a debt to Lisa Copen, founder of Invisible Illness Awareness Week. She has done so much to provide support to people with “invisible illnesses” like Rheumatoid disease. I don’t know if she coined that term, but she certainly popularized it. This...Continue reading      6 Comments » Read more
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