Kelly O'Neill, Author at Rheumatoid Arthritis Warrior | Page 37 of 118

Woman’s Day RA Is Destructive, but Phil & Venus Have Cred

In 2009, I first encountered something I called “the PR problem” with RA. For three years, I’ve disagreed with Woman’s Day magazine over whether the Woman’s Day version of RA is correct. On the blog, we’ve had discussions about various other fallacious articles on RA (some listed below). WebMD magazine offered a similar article last winter...Continue reading      37 Comments » Read more

Mayo Clinic Contest! 5 Ways Patients Can Make a Difference!

1) Rheumatology patients are teaching medical students in Britain! The biggest difference patients can make is to help the medical profession understand their conditions better. Patient instructors in rheumatology are instructing undergraduate and postgraduate medical students are viewed as “an excellent, relatively under-utilised, resource.” “They are especially effective at enhancing students' understanding of the impact of...Continue reading      9 Comments » Read more

The 10 Fundamentals of Care for Rheumatoid Patients

Click here to download the printable PDF version of this important statement. What would appropriate rheumatological care for RA patients look like? The ACR tells us that the majority of Rheumatoid patients do not receive treatment that follows their recommendations. What are some specific requirements for good rheumatology care for RA patients? “Although the outcome of RA...Continue reading      17 Comments » Read more

The Powerful Health Care Role No One Really Wants: Being a Patient

The valuable knowledge of patients with diseases like RA Today, Katie Beth and I flew home from San Francisco where I spoke three times this week: There was a presentation about the value of patient input with chronic conditions like rheumatoid disease, a panel discussion about e-patients and e-docs at Digital Pharma West, and an informal address...Continue reading      17 Comments » Read more

Energizing E-patient Engagement – Collaborations that Count

This blog is not about me because it’s always been much more than a way to share my own journey. This blog tells OUR story – the true story of Rheumatoid disease, the people who live with it, the fight to cure it, and the process that patients have entered to participate in improving our...Continue reading      6 Comments » Read more

Accurately Measuring Rheumatoid Disease Activity

We may be watching the slow evolution of the ability to measure Rheumatoid disease activity (DA) which could obviously revolutionize care for the disease, if handled properly. “Visible” evidence can be a valuable tool in treating a disease that does its damage concealed inside of a body. 2006: Remission imaging study reveals Rheumatoid Arthritis disease activity Remember...Continue reading      12 Comments » Read more
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