Kelly O'Neill, Author at Rheumatoid Arthritis Warrior | Page 54 of 118

RA Reality Versus “The Lie”

When everything looks normal but it’s all wrong Countless times I’ve said that I would gladly be wrong about RA. I’d gladly be delusional instead of this sick. I often say “If only I actually were crazy. Then, I could take medication and at least believe I felt better.” Of course it’s a facetious remark, but...Continue reading      116 Comments » Read more

Do You Have Strange RA Symptoms?

What are the strangest symptoms you’ve had since the RA onset that you think are related to the rheumatoid arthritis / disease? For some, strange RA symptoms like fevers, weight loss, and laryngitis turn out to be perfectly accepted historical symptoms of RA that patients just aren’t told about. However, sometimes people ask about unusual symptoms that I...Continue reading      331 Comments » Read more

Santa, Bring Her a Rheumatologist Please

Wanted: good rheumatologists Sonya’s tweet brought me a smile. So much truth in so few words. Those of us with rheum diseases like RA need a good doctor the way most people need a reliable car mechanic. We might crash and burn without it. This is short for two reasons: 1) I don’t have a long list of...Continue reading      57 Comments » Read more

Inflammation and Thomas the Tank Engine

Today, my Roo is six years old. Saturday, I went shopping with Mary Khris to buy supplies to create a little Thomas the Tank Engine party. Since I can’t draw characters with icing any more, we look for ways things can be used creatively. I found some lightweight rubber train engines (actually bath toys!) that we...Continue reading      37 Comments » Read more

I Want My Life Back

RA can hurt so bad that even tough guys cry. Lately, I’ve cried for a different reason. I want my life back so much. I want to run on the beach, but I stumble running to the bathroom. I want to hold a tennis racquet, but most days can’t hold a TV remote properly. Want to...Continue reading      65 Comments » Read more

A Rheum Full of Contradictions

1) There’s “remission” when there’s no remission. A newly published study says more pain is seen with an older conception of Rheumatoid Arthritis remission than with newer more stringent remission criteria. “Disease remission has become a feasible goal for most Rheumatoid Arthritis (RA) patients; however, patient-reported symptoms, such as pain, may persist despite remission.” Remission is...Continue reading      29 Comments » Read more

ACR REF Rheum Research & Courage That Won’t Back Down

“Hey baby, there ain’t no easy way out… I won’t back down.” We just got back from Miami from the ACR Research Education Foundation (REF) RA Investigators’ Meeting where important research topics were discussed such as Lung disease of RA – our 2nd leading cause of death Rheumatoid heart disease research Porphyromonas gingivalis and the pathogenesis of Rheumatoid Arthritis On...Continue reading      11 Comments » Read more
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