Communication and Inspiration Archives | Page 13 of 20 | Rheumatoid Arthritis Warrior

Traveling to a WEGO Health Panel for Health Activists

A month of firsts It has been a month of firsts for me. There were fun things like our first Rheumatoid Arthritis Meme and my first prescription reading glasses - how great it is to see again! There were less fun hard things like medial branch nerve blocks in my back and neck and my first...Continue reading      26 Comments » Read more

Twitter & a #rheum for the Rheumatoid Online Community

You are the best part! The best thing about this blog is the readers. I know – I if I didn’t write a blog, then there wouldn’t be one. But the readers help make this blog a community, especially through the comments pages. We also have a thriving RA Warrior Facebook community where people are making...Continue reading      10 Comments » Read more

What Can We Do About the Rheumatoid Arthritis Awareness Problem?

Why do I believe we need Rheumatoid Arthritis Awareness? When I got full blown Rheumatoid Arthritis, I had no idea I’d gotten stuck with an unpopular disease. It was a surprise when one person after another brushed aside my explanation with things like, “You are too young to have that” or “Oh yeah, I have that...Continue reading      63 Comments » Read more

Tony Snow: Illness Doesn’t Change the Person You Are

Over the last few years, some people have faded out of my life after RA made it impossible to do most things I used to do. Some people didn’t want to hear about illness, or pain or medicine. They didn’t understand what I meant when I said “can’t.” I never ask for sympathy for being...Continue reading      22 Comments » Read more

Yale Medical School Graduation Address: a Patient Centered Approach

Dr. Donald Berwick made a unique graduation address at Yale in May 2010. His own daughter was graduating. I wanted to comment on Dr Berwick’s speech and post it for you for a while, but every time I read it I cry. Advocating patient centered care: What does that mean? I don’t often write about how healthcare...Continue reading      5 Comments » Read more

Phil Mickelson’s Psoriatic Arthritis

“Mickelson arthritis” brings shrugs “Phil Mickelson arthritis” was such a common search already that it was suggested to me by Google’s search tool as I typed his name yesterday. That was only two days after Mickelson announced his diagnosis of Psoriatic Arthritis to the press. I have to admit that I shrugged the first time I...Continue reading      31 Comments » Read more

Perseverance in Fighting Rheumatoid Arthritis

What keeps you fighting? I tried to quit... At one point, I thought I would be fired as a professional patient. No such luck. I’ve also tried to quit Rheumatoid Arthritis. Maybe you remember my Eject Button. I tried to quit another chronic illness once. Maybe you read my ostrich jokes. I haven’t had a lot of...Continue reading      23 Comments » Read more
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