Rheumatoid Arthritis support: 3 sources
This blog is about the nicest thing that someone has done for me since I became ill with Rheumatoid Arthritis. It’s not tough to decide, but it’s tough to talk about.
First, there are some honorable mentions.
1) There’s that first good doctor who confirmed my diagnosis of Rheumatoid Arthritis. Support from the doc and nurse was generous. They treated me like a fragile flower that they wanted to preserve. I was handled gently and spoken to kindly. The nurse carried my bag and the doc put my shoes on and off for me. Doc prescribed an aggressive course of disease treatment and made sure that it went through the insurance approval quickly. For 2 months, they kept tabs on me over the telephone while an insurance problem prevented paying for an in person visit. They got 5 gold stars.
2) Except for my kids who see me every day, my family and friends do not understand how I have been affected by Rheumatoid Arthritis. Support is not given because they don’t realize how much I am limited in what I can do or how much pain I live with. They don’t understand why I no longer garden or build things or write letters. However, my mother knows that I‘ve had tremendous pain in my feet since I was 15. When the doctors could not find a cause, she would always mention her mom. My grandmother had plantar fasciitis and nodules that were painful to stand on. I think that helps my mom understand that my feet hurt even though she does not understand my Rheumatoid Arthritis. Support meant sending me large thick gel mats for my kitchen floor. It has been the best present for someone with Rheumatoid Arthritis.
3) Some special friends who have Rheumatoid Arthritis support each another like no one else can. There have been several special people who befriended me in the last year and have shared my journey. They open up their hearts to me and are always willing to listen. They never doubt me or try to one-up me. They genuinely want to know about how I feel and apply gentle pressure to get me to take good care of myself and keep fighting RA. Life would be harder without people like that. And it’s much more blessed with them.
My biggest Rheumatoid Arthritis support…
Without question, the prize for the kindest and most generous support has to go to my kids. They had to reverse roles and start taking care of their mom a couple of decades ahead of schedule. Each one has made special efforts, but I especially must mention my daughter Katie Beth. It’s not just that she makes dinner most nights without complaint. It’s not just that she sits in on every doctor’s appointment with me and carries my purse everywhere I go.
I could not manage without that support, but there is more. She has decided to attend college locally until or unless I’m well enough to do more for myself. I told you this was hard to talk about. The last couple of years I’ve wrestled with this. The Rheumatoid Arthritis continued to progress, but I continued to insist that Katie Beth have the same opportunities as her older sister. People who don’t understand pressured me to pressure her harder to go away to school.
After a lot of tears, I’m trying to accept that Katie Beth will have different opportunities, not fewer. Like her sister, she has earned a scholarship that will open many doors. However, she has already walked through one door that many people never do, learning to care for others as much as herself.
:star: :star: What is the nicest support anyone ever gave you because of Rheumatoid Arthritis?
- Rheumatoid Arthritis Support of another kind
- 13 Ways to Help People Living with Rheumatoid Arthritis
- Being Blessed While Having Rheumatoid Arthritis
- Interview with a young woman living with Rheumatoid Arthritis, Part 1