Email a copy of 'Sonny’s Disappearing Digits: a Fairy Tale of Rheum Disability' to a friend
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E-Mail 'Sonny’s Disappearing Digits: a Fairy Tale of Rheum Disability' To A Friend
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Sounds like my story. One day I woke up and couldn’t use my right hand. Went to ER. Doc took a look at my hand and said you need to see a Rheumatologist. Like Sonny, I didn’t go and continued working. Then, I woke up and couldn’t use my left hand. Still went on working. Wasn’t till I couldn’t walk that I saw Rheumatologist. The rest is history.
I couldn’t finish the story, because I already know the end of it. I think it is incredibly well written and completely describes the progression of the disease in the professional realm. One day you notice you are a little less capable of doing the things you could the day before, and then the snowball starts it’s roll. I have made changes, in my duties, in the assignments that I seek, in what I will agree to do with my friends and family. It’s heartbreaking to read it under the guise of a children’s story, but it so incredibly accurate.
Kelly, You are back!!!! This story made me cry because it so described my journey as I am sure it did for many of us trying to navigate our lives. I felt it deep into my soul. You continue to amaze me in so many ways. I am so sorry you are going through such a difficult time in addition to dealing with the RD. I know Roo knows what an amazing Mom he has.
Was diagnosed with RA in 2004. It has been a long painful journey as you all know. I cannot get off prednisone (low dose). Any suggestions?
From the list of prednisone posts, try this one for ideas, Cathy. Also the comments page. http://www.rawarrior.com/when-you-cant-get-off-prednisone/
I just want to say thank you for your site. I’m In the ditches waiting to see a rheumatologist, it takes many months to get in.
I am scared
After years of battling with arthritis in many places, lots of NSAIDS, COX-II’s, injections, etc, mostly due to the aftermath of acute injury, I woke up one morning and my hand just simply didn’t work. There wasn’t even pushing through the pain. Scared me, have an uncle with awful RA, started long before biologics and lots of silica/asbestos exposure for me and him. I didn’t even ever injure my hand where it hurt EVER. Now I’m watching my hand deform by the weeks, it’s ugly. It’s slow. It’s insidious. I have 6 kids, 35 years old and am scared to death this will happen in my other joints.
I’m learning to write with my left hand now, my 3rd grade boy has much nicer writing than I can make. I’m trying and hoping it doesn’t hit that side.
I’m so scared
I’m really embarrassed.
I have been in the military 19 years. I have worked all those years as the lone or few females in my profession. Not to brag on myself, but I am tougher than most, and this is more than I can fight through.
WHY DOES IT HURT SO MUCH, AND ITS ONLY THE BEGINNING?
WHAT IS TO COME?
This is only my first flare like this… Is every flare going to be like this?
I don’t understand why my hand doesn’t even work
I played boys ice hockey growing up, I know how to push through pain, my hand simply fails to do what I expect it to do
THIS SUCKS BAD
Thanks again
BTW. Worked for 10 long years after diagnosis and admire everyone who still works.
L. Smith. I understand completely cause that’s exactly how my RA started. Mt hand simply wouldn’t work and the pain was horrible. God bless you. Prayers for you and all warriors.
Thanks for posting this story! I shared it with my children,family and friends so they can have some understanding on Rheumatoid disease and things I am going through. I am 28 years old and have severe RA,Sjorgen’s and blood disorder. I LOVE THIS WEBSITE! It really helps me manage this disease better.
Aww thank you!