Living with chronic illness like RA Archives | Page 9 of 14 | Rheumatoid Arthritis Warrior

Santa, Bring Her a Rheumatologist Please

Wanted: good rheumatologists Sonya’s tweet brought me a smile. So much truth in so few words. Those of us with rheum diseases like RA need a good doctor the way most people need a reliable car mechanic. We might crash and burn without it. This is short for two reasons: 1) I don’t have a long list of...Continue reading      57 Comments » Read more

Without e-Patient Input, an ER Experience Can Be Empty

Things that patients know about their health and the wealth of information they find online make input from patients valuable and meaningful. These patients are called e-patients. An e-patient acronym: Expand Participation by Allowing The Input of Evidence Not in Textbooks Hopefully, you didn’t miss the exciting news for rheumatology e-patients acknowledging that by “pooling our knowledge and...Continue reading      52 Comments » Read more

Not a Real RA Patient

I always had a silly super-hero complex. I thought that I could do anything if I tried hard enough or stayed up late enough. Add to that endless optimism and a belief that God will always make everything turn out right. There’s this tendency to see life as a maze with many options. Never give up;...Continue reading      36 Comments » Read more

Men and Rheumatoid Arthritis: Video PSA

Why a video about men and Rheumatoid Arthritis? This video PSA (public service announcement) is something that I have wanted to finish for months because the story about men and Rheumatoid Arthritis has not been told. I also believe that telling the story of men and RA will help everyone who lives with RA by creating...Continue reading      46 Comments » Read more

The Hypochondria of RA Pain: Do I Smell an Elephant?

Hypochondria is an elephant in the room with RA pain The elephant house was always my favorite place at the zoo. We always knew when we were near it …by the smell. So, how can an elephant creep into a room? They don’t exactly tip-toe. Maybe what happens is that nice people don’t discuss certain things, so no...Continue reading      31 Comments » Read more

10 Commandments of Chronic Illness

I hate cute little tips for chronic illness It bugs me when I’m frequently asked in interviews what quick tips I’d give to those who are newly diagnosed with an illness like RA. I feel like saying, “Sorry, there aren’t any tips that would make it easy to live with RA because RA is hard.” On...Continue reading      76 Comments » Read more
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