Woman’s Day Rheumatoid Arthritis Article: A Video Appeal | Rheumatoid Arthritis Warrior

Woman’s Day Rheumatoid Arthritis Article: A Video Appeal

Rheumatoid Arthritis Warrior & the Woman’s Day article

Welcome to my first video blog! I’ve been working on responding to the Woman’s Day Rheumatoid Arthritis article for almost a year. It was my first encounter with the PR (public relations) problem with Rheumatoid Arthritis in the media. Please read my first blog on the Woman’s Day Rheumatoid Arthritis article here. I’m sure I’ll get better at the technical aspects, but I put my whole heart into this video post.

Encourage a new Woman’s Day Rheumatoid Arthritis article

This video is an appeal to Woman’s Day to publish a new article on Rheumatoid Arthritis, using information and interviews from this website, such as The RA Info Button. If you agree with this request, please tell them by writing them a letter or sending them an email or fax. I know it will take your time, but I think this is important. Maybe I’ll do all three in case mine gets lost in the mail.

Postal mail:

Reader Mail
Woman’s Day
1633 Broadway
New York, NY 10019

Email: womansday@hfmus.com

Telephone 212-767-6418

Fax 212- 767-6421

From the magazine: “When requesting a reply, include telephone number and address.”

NOTE: Woman’s Day has removed the original article with its non-apology. Below are two screenshots of the original article. There is also a photograph of the print version of that issue of Woman’s Day here – click here.

Related reading:

Woman's Day version of Rheumatoid Arthritis/ Rheumatoid Disease

Woman's Day version of Rheumatoid Arthritis

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also https://www.rawarrior.com/kelly-young-press/

79 thoughts on “Woman’s Day Rheumatoid Arthritis Article: A Video Appeal

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  • June 4, 2010 at 8:43 am
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    Go Kelly!!! You look lovely by the way! 🙂 Thank you for giving a voice to those of us that suffer. Your video reply was very concise and you were very poised and clear spoken. THANK YOU once again for taking the time, effort, and sacrifice to do this blog. The world is a better place with you in it!! Luv u!!

    Reply
    • June 4, 2010 at 8:55 am
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      Thank you, Alicia! I meant every word. It’s people like you that keep me going when this gets really hard – thinking of what you’ve been through with this evil disease. :heart:

      Reply
  • June 4, 2010 at 9:34 am
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    You just come across as such a sweet person, Kelly. I hope this gets the response you’re looking for.

    Reply
  • June 4, 2010 at 10:02 am
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    Excellent job, really hope they DO listen, good luck to you with this, I’m thinking of you

    Reply
  • June 4, 2010 at 10:45 am
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    The video is excellent. You can tell alot of thought and time went into it. I hope Women’s Day will “revisit” RA and will “visit” rawarrior.com.

    Thanks for all you do.

    JK

    Reply
      • June 4, 2010 at 11:29 am
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        I agree with all the above posts. You did a fantastic job and you are a very beautiful lady. I too hope that Women’s Day will listen. Your right we all need to make the noise. I have thought for several days how cool it would be if one of the national morning shows would have you on to explain what RA really is and I know you would a wonderful job. Thanks for all your dedication.

        Reply
  • June 4, 2010 at 11:26 am
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    As a man I want to join in with my compliments to Kelly for her brave, intelligent and charming video. Maybe if us guys speak up more we can help dispel the ‘hysterical woman’ concept which the WD article probably feeds e.g. ‘the woman in the pool seems great, what’s wrong with you?’. I remain puzzled why the media presents these cheerful views of RA. Kelly’s blog from March 29th discusses an article titled “The Beachcomber” published in “Arthritis Today” and it was even worse than the WD article I thought. But cheers to Kelly, our articulate, energetic and attractive spokesperson.

    Reply
    • June 4, 2010 at 11:39 am
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      Thanks for that endorsement Jay! And you know what? You’re right, especially because the Beachcomber thing was published by the Arthritis Foundation. I say yes! Speak up guys!

      Reply
  • June 4, 2010 at 12:12 pm
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    Thank you for a really well done video. What a great job! We need to all fight this and I will be sending my fax,letter and email to WD. Thank you for providing the vehicle to do this so that we may all band together and speak as one. I hope that we will be so loud that they can not ignore this issue and will do another article.

    Reply
  • June 4, 2010 at 12:22 pm
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    Nice video Kelly. I just sent my e-mail to WD.

    Reply
  • June 4, 2010 at 12:39 pm
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    BRAVO! Kelly that was excellent. You did a wonderful job. It is honest, compelling and to the point. Thank you so much for doing it and being our voice. You are the best! I will send an email to them. We need them to take notice and you have started something here that is so important.

    Reply
  • June 4, 2010 at 12:52 pm
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    Bravo! Kelly my dear you are so amazingly AWESOME! If the editors @WD are not completely ashamed of themselves by now they soon will be! I hope that they FEEL our pain and apologize for minimalizing our lives and the lives of our loved ones! My PAIN is real and it doesn’t go away just b/c someone says it should. Go get ’em Warrior Woman I’m right beside you!!!! God Bless! :rose:

    Reply
    • June 4, 2010 at 1:14 pm
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      Alice, I know you’ve been through so much w/this disease in such a short time. It is insane the way they portrayed it. I wish they could talk to you – it would change their story. Charge!!

      Reply
  • June 4, 2010 at 1:03 pm
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    Kelly, thank you so much for not just dropping the subject with Woman’s Day. I have personally found the old adage,”the squeaky wheel gets the grease”, to be true (or you can insert the story of Horton – both work)! I thank God for you and for your dedication to informing, supporting, educating, and fighting the cause of RA. My husband and I will both be sending letters asking WD to interview you and publish a more accurate article.

    Reply
  • June 4, 2010 at 2:42 pm
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    loved it and love you !

    Reply
  • June 4, 2010 at 3:09 pm
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    I finally got to hear my hero…quite literally :-))
    I have never seen someone pursue a cause with such vigour! Your resilience inspires me Kelly…every single day.
    Thanks so much!!!!

    P.S.: My mail account is open. I am hitting send to Woman’s Day in next 5 mins.

    Reply
    • June 4, 2010 at 5:18 pm
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      Well, I sent mine Shweta – so we’ll seeee what happens. Did I sound funny? There was a gigantic frog in my throat that whole day! 😉

      Reply
      • June 4, 2010 at 10:06 pm
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        you sound great Kelly!! Awesome..Awesome….Just the way you are :heart:

        Reply
  • June 4, 2010 at 4:33 pm
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    What a GREAT job you did on your video,, as you do on all your posts/information. I have been a fan since being dx last august, and you have inspired me numerous times! Thank you SO much for all that you do. YOU ROCK!!

    Reply
  • June 4, 2010 at 5:36 pm
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    While I am not living with RA myself, I wanted to tell you how inspiring you are! You are really getting the word out there about RA which is so necessary. There’s hardly any talk about it in the public and it is something that NEEDS awareness and a CURE!! Fight on girlfriend!~ 🙂
    Linda
    P.S-My husband has RA and I love your website…AMAZING info!

    Reply
    • June 4, 2010 at 6:41 pm
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      THANK YOU, Linda. A special greeting to you for reading as a significant other. Your husband is blessed to have you. 😀

      Reply
  • June 4, 2010 at 9:01 pm
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    Whoo hoo Kelly!! Way to go! That was GREAT!! I am going to e-mail them now!! Thank you for taking a stand for RA and being our “spokes person”! Without you, I know I would be so lost in this “new life” I get to live!!!
    It was great to “hear” you!! And I didn’t hear a frog!! Just a sincere woman who wants the truth about RA to get out!! : )

    Reply
  • June 5, 2010 at 7:21 am
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    Firstly, Thank You for being our voice…
    You have dealt with this disease for so long, but continually for 4 years without 1 day of being painfree. Seeing and hearing you stand up for people all around the world, brought tears to my eyes, and a joy to my heart, that no-one will ever feel alone, and ashamed to say the words “I have RA ‘.
    I will send an email to WD today, and hope that all the emails and letters that they recieve will be enough to encourage them to interview you and get the real truth out there .
    You indeed are a RA Warrior, sent from heaven to educate the world of the Disease
    Thanks for being a voice for so many.

    Reply
    • June 5, 2010 at 7:54 am
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      Thank you for the kind words, Margaret. It has helped me, too, to know you and know I’m not alone. This helps me keep going when it seems like it’s too hard. :rainbow:

      Reply
  • June 5, 2010 at 10:48 am
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    WAY TO GO KELLY!
    You did a wonderful job and I, for one, thank you from the bottom of my heart.

    I just sent an e-mail and will get a snail mail note ready to go ASAP.

    What you are doing is invaluable and greatly appreciated!!
    Love, Connie

    Reply
    • June 5, 2010 at 10:53 am
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      Thanks for doing that, Connie. I’m doing the same. Whoohoo!

      Reply
  • June 5, 2010 at 12:55 pm
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    I`m 69 years old and was diagnosed with RA when I was 20.The rollercoaster ride with this monster I know all about.
    There is a problem with the perception of what RA is about.Arthritis is only one of the symtoms and this desease should have another name to more accurately describe it.You wouldn`t say someone has a headache if they have a brain tumor so let`s stop calling it arthritis because one of the symtoms is joint inflamation.

    Reply
    • June 5, 2010 at 3:42 pm
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      You are right, Frances. I hear that from a lot of patients. I think if patients voted, that would be the end of the “A” word for RA. What would you call it?

      Reply
  • June 5, 2010 at 11:14 pm
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    My daughter can up with a name…she calls it…R.A.D.D..rheumatic autoimmune disease disorder!!!…she tried!! thats what she tells people her mom has now..

    Kim

    Reply
    • June 5, 2010 at 11:27 pm
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      Kim, I like it. I love that your daughter thinks about that. And when I was young, “Rad” meant cool. Haha. I like Rheumatoid Autoimmune Disease. Can you ask her if that would be okay? 😀

      Reply
  • June 6, 2010 at 1:23 am
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    Kelly..my daughter Mary says that would be ok with her..she was all happy someone listened to her idea..

    Kim

    Reply
  • June 6, 2010 at 8:37 pm
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    Kim- Tell Mary thanks for the new name it’s great! God Bless! :rose:

    Reply
  • June 7, 2010 at 9:02 am
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    Explaining RA is no different from explaining other diseases in that it is simply too complex. Heart disease, Diabetes and Allergies are equally daunting for the average person to understand. I tell people that I have RA which is a blood disease that affects my whole body. Anything else is too much information and is confusing.It may not be measureable all cases but it is definitely carried in our blood. This explanation is enough information for most people that I come into contact with, and serves to get my mother-in-law off my case when she wonders why I take all these drugs!

    Reply
    • June 7, 2010 at 9:22 am
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      Joanne, you’re right Diabetes is also complex. There have been a lot of public service ads over the years so that most people do know it is a serious disease. Do you think you say “RA” and “blood disease” instead of saying “arthritis” because the A word tells people it’s not something serious, just “arthritis”?

      Reply
  • June 7, 2010 at 12:55 pm
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    Excellent job Kelly! I will certainly take the time to send requests to Woman’s Day. I actually stopped subscribing after their erroneous article on RA. I felt it showed very little research on their part.
    Thank you for all you do to help people around the world with this disease. God has chosen you for a very special mission.
    TBTG!
    Natalie

    Reply
    • June 7, 2010 at 1:01 pm
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      Thank you Natalie. You are so right. It showed no research at all & their reply was minimal. I hope everyone who reads this page will keep writing! This battle is far from over!

      Reply
  • June 7, 2010 at 7:59 pm
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    GREAT JOB, Kelly!! Those of us with RA are so blessed to have you as an advocate for us. Let’s crash their system with our emails! Hey, that’s actually an analogy to RA, which crashes our systems. hmmmm… 😉

    Reply
    • June 7, 2010 at 8:08 pm
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      Good idea Caysea. I have done my email and snail mail now. Tomorrow, I’ll fax…

      Reply
  • June 7, 2010 at 8:16 pm
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    Good analogy Caysea!
    Snail, and e-mail sent. Check
    Fax sent. Check
    Now about those ridiculous RA ads—————————

    I’m reminded of what Kelly once said about eating an elephant, you do it 1 bite at a time. I think his trunk is gone!! WOO HOO!

    Reply
  • June 7, 2010 at 9:39 pm
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    :rotfl: I’m picking “trunk” from teeth :rotfl: Good one Connie!

    I have final eye surgery tomorrow to erase the damage of Prednisone, but Hey RA isn’t worth mentioning-at least not TRUTHFULLY HUH?!

    God Bless All! :rose:

    Reply
  • June 7, 2010 at 9:49 pm
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    Nice job on the video, Kelly! I sent my e-mail, which is a big step for my non-confrontational self! And for the record, I like RAD – Rheumatoid Autoimmune Disease. Much better description 🙂 — Thanks, Kim & Mary!

    Reply
  • June 7, 2010 at 11:52 pm
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    I finally got a chance to get my email off. Thanks so much Kelly for being our voice. Now I will follow up with prayer that you will be honored for your effort and they will listen and respond favorably.

    Reply
  • June 8, 2010 at 6:24 pm
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    Great job! I found the article ridiculous. I would rather Women’s Day not have bothered at all rather than spew out a cartoon, ‘dumbed-down version of this devastating illness. The epitome of irresponsible journalism! Prior to this diagnosis, I was one of very few female trial attorneys in my state. Now, less than 7 months later, I’m having a good day if I put on anything that has buttons and snaps, forget practicing law and making a living to pay for enbrel, methotrexate and a whole list of other meds. After reading the Women’s Day article defining Rheumatoid Arthritis, I’m thinking I need to get my money back from all of the doctors, because I obviously don’t have RA, but some other more horrible disease.
    Keep up the good work! I’d love to sit down and let them interview a ‘real-life’ patient.

    Reply
    • June 8, 2010 at 6:51 pm
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      Thank you Pamela. Well said. I hear from so many terrific & smart ladies like yourself who feel the same way. And then the folks at Woman’s Day stick to their story & say there is nothing wrong w/ what they wrote. It’s hard not to let it get to you now & then. We lose so much. We fight like warriors to find any scrap of a life. We never mention our pain. And we have to deal w/ people saying its nothing & shaking their heads at us saying, What’s your problem? It took me almost 10 min to type this. Can you tell I’m having a hard day? :heart:

      Reply
  • June 8, 2010 at 8:17 pm
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    You Go Pamela!
    Did you send your post to WD? BLUE RIBBON CALIBER RESPONSE!
    Thank you and gentle hugs!

    Reply
  • June 8, 2010 at 8:25 pm
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    Dear Alice,

    Praying for an excellent recovery after your eye surgery.
    I had to stop taking Plaquenil because of eye problems.
    Please everyone get checked at least 2x a year if you’re on Plaquenil!!

    Alice, do you need extra dental floss to get the elephant trunk out of your teeth? I have plenty——————YES, another
    aspect of this horrendous disease (Sjogren’s)—-in the process of a dental implant.

    Love and hugs!

    Reply
    • June 8, 2010 at 8:49 pm
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      My fingers hurt too much to floss now. My dentist is sad for it. 🙁

      Reply
  • June 8, 2010 at 9:09 pm
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    Dear Kelly,

    I’ll floss for you, (while I still can).
    I know you’re hurting and I’m praying.
    I’ve lifted up your affliction today and asked the Lord to take it away.

    Love you!

    Reply
    • June 8, 2010 at 9:17 pm
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      thank you Connie – it never lets up ever – just bad now in fingers. I’ll do the shot & it will be a little better. 😀

      Reply
  • June 8, 2010 at 9:47 pm
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    Thanks Connie! I know all about the teeth issue and saving $$$$ for implants b/c I hate these dentures, they make eating “elephant” a bit harder :laugh:

    Kelly xxxxx feel better sister!

    eye surgery went well I’m a bit sore but nothing compared to what my joints are feeling almost 3 months without mtx or any RA meds *sigh* gotta have all the surgery though… God Bless All! :rose:

    Reply
    • June 8, 2010 at 10:05 pm
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      I don’t know how you are making it Al. I think of you a lot.

      Reply
  • June 9, 2010 at 8:04 pm
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    Watching your video brought tears to my eyes, I can’t thank you enough for your fight. You are my hero!

    Reply
    • June 9, 2010 at 8:20 pm
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      Thank you, Bonnie. Thanks for taking time to say that. I hope this will help.

      Reply
  • June 13, 2010 at 11:36 am
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    you are by far my hero too kelly. you have the fight in you like a warrior, lol like your name. if i hadn’t found you i think i would have gone insane by now. you provide me with answers that a doctor should be giving me. believe it or not i get answers from you more so. you must keep up the fight to get the word out there into the world about just how bad R.A and other related diseases are.

    i know i would give you a big hip hip hooray from top of every mountain…. if i could get to the top ;o)

    Reply
  • June 15, 2010 at 12:15 am
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    I’ve gotten behind in all my reading and haven’t been good about commenting lately…. I’m trying to catch up and just had to say, you did a fantastic job on the video and I was so glad to be able to connect your face with your sweet voice and your words of wisdom and encouragement that you have given to me and to so many others on this site. I sent in my comment to WD last year when that ridiculous article came out. I hope they will listen this time. Thanks, Kelly. You are awesome.

    Reply
    • June 15, 2010 at 12:58 am
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      Thanks, Jenny.
      It is good to hear from you. :heart:
      Yes, they completely ignored the comments. This time, we’re using real mail / email. Maybe whoever the editors are at the “letter to the editor” will listen more than whoever is the moderator of their web article.

      Reply
  • August 1, 2010 at 8:49 pm
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    Absolutely fabulous Kelly!! I hope that they take your request into serious consideration. We need people to know the truth about the disease and how it effects us and those we love.
    Thank you for all that you do. You truly are a blessing!

    Reply
    • August 1, 2010 at 10:28 pm
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      Thank you! I cringe when I watch myself squinting w/ no glasses,etc. But I think it was worth it. From what I can tell, they really believe we are exaggerating.

      Reply
  • January 27, 2011 at 10:05 am
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    My letter to the editor at WD. Please feel free to use this if it helps you compose your reply to this article as well.

    I am writing today to encourage your publication to take a second look at Rheumatoid Arthritis and the picture that your magazine has painted of those of us suffering with this disease. I believe that we deserve more from you. I believe that you want to do right by your clients, many of whom HAVE RA and are very much offended by your uneducated portrayal of us. I for one will not be purchasing another issue until you have corrected this detrimental mistake. It may not affect you, but it most certainly affects those of us already fighting hard for understanding and doing our best to live well with this disease. Having an invisible disease means that other than our doctors and closest loved ones, no one else really understands or believes the pain that we live with, the deformations that happen to our bodies, the illness caused by being auto-immune and having to take biologic medications that further reduce our immune system. You have made light of us, a joke almost. Realize that now nearly 50 MILLION adults and children are suffering today and crumpling up their last bought issue of your publication in complete disgust of you disregard to us.

    Reply
  • January 8, 2013 at 3:38 pm
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    What a beautiful piece, made me cry… I have been diagnosed with RA as well. I loved to run, workout play with my son and now can barely get out of bed. It is a life change that all RA sufferers have to face, each and every day. I love rawarrior, it gives me encouragement to live life to the fullest. Love all you wonderful ppl battling this horrible disease, we will win.

    Reply
  • March 14, 2014 at 6:24 pm
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    I must have been meant to see your lovely post today. I have inflammatory arthritis and went to a rheumy who did treat me aggressively at first. Since my labs never showed enough inflammation, he couldn’t diagnose RA. I was sick with side effects from all drugs, even injectable mtx. During my last exam, he pushed hard on the back of my neck and inside of my knees. When I said that hurt, he said that it must be fibromyalgia! I never went back and it has been almost a year. I am struggling with trying to find someone else and being treated like a hypochondriac! Sorry for the long post! You are so supportive and encouraging! Thanks and blessings to all….

    Reply

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