The Birth of the Rheumatoid Arthritis Warrior Blog

birthday cake 1

Today Rheumatoid Arthritis Warrior celebrates its 6 month birthday. The work of RA Warrior has brought me more surprises and blessings than I can explain in a single blog post. The fatigue, hand pain, and weakness of RA have made writing a blog unique challenge. And yet those symptoms of Rheumatoid Arthritis in my own life are also what make this blog possible.

Blogging suits me

Research and writing have always been fun for me. I remember in seventh grade getting a C on a perfect paper because Mr. M said that no twelve year old could have written that without help. I whimpered.

I was always a social butterfly, but RA made me extremely private. If you don’t know why, you might read this blog post: The Use It or Lose It Approach to Rheumatoid Arthritis. Anyway, blogging was the perfect solution to that problem.

The technology challenge has been the biggest obstacle, but we have accomplished a lot anyway. Lots of problems we’ve had with the blog have been due to my choosing an older WordPress theme to redesign and my “do it yourself” approach. Things which should have taken only a few minutes have taken several days. I still have so many things I want to do with the site that I’m figuring out how to do…

Why an RA blog?

In part, my search for answers about Rheumatoid Arthritis symptoms, arthritis treatments, or arthritis facts for survival lead me here. And then there was my broken heart. Whenever I’d read forum comments or personal stories, I’d wish I could do something to make a difference.

I have Rheumatoid Arthritis, the unrelenting kind. So, I am always in pain. I know it’s not polite to say that. However, it is the truth which with I live and I would really like it if others could acknowledge that reality. I have to just sigh when I’m told to “feel better soon.” So far, I haven’t felt better for 5 minutes – it’s been almost 4 years.

Remember, a blog’s not a Rheumatoid Arthritis cure

As I explained in a recent post, writing an RA blog hasn’t cured many problems that are caused by Rheumatoid Arthritis. In addition to the RA itself, I still have problems with people who are what I now call “RA atheists.” RA atheists do not believe that Rheumatoid Arthritis is as bad as we claim it is.

Just this week in church, a man reached out to shake hands. I moved toward him. But, I was not close enough to him yet and he only grabbed hold of my fingers. Then he squeezed hard, lovingly crushing all four fingers. Since I didn’t have time to brace myself, I yelped in pain.

A woman who I know well was standing right next to us. I gave up trying to get her to believe in my RA a couple of years ago. She looked disapprovingly and said sardonically, “You are alright, aren’t you?” I said, “No, not yet.” Today, I can laugh, but then I wanted to run-hobble out of the church.

My birthday present

If you’ve enjoyed this RA blog, and you are looking for a birthday present, here are a couple of things on my wishlist:

  • Soon, I’ll announce the launch of my spicy RA Warrior newsletter. You can sign up early in the sidebar. And pass it on.
  • Link to this blog from your own blog or website. We moved from the Blogger domain 2 months ago, so old links needs to be updated.
  • Recommend this site to others by posting links through social media like Facebook, Twitter, and Stumble. This needs to be done on a regular basis.
  • Submit your Onset Story and RA Kitchen tips / recipes /RA-healthy eating strategies. Follow the links for instructions.
  • Subscribe by email or RSS so that you won’t miss anything. The little orange & brown button on the sidebar says, “Subscribe.” The blog will be delivered to your computer.
  •  Use the new Email gadget below the post to email posts to friends.

RA Warriors

My own life will never be the same because of this blog. Many of you have become valuable allies in the war against Rheumatoid Arthritis. I am grateful that we stand side by side, refreshing each other for each new round of the fight.

Recommended reading:

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also http://www.rawarrior.com/kelly-young-press/

15 thoughts on “The Birth of the Rheumatoid Arthritis Warrior Blog

  • November 17, 2009 at 8:22 am
    Permalink

    Happy BD RAWarrior! Keep up the gr8 work. I so enjoy the blogs!

    Reply
  • November 17, 2009 at 8:59 am
    Permalink

    Happy Birthday! You are doing an amazing thing! Keep it up. 🙂

    Reply
  • November 17, 2009 at 1:03 pm
    Permalink

    You’ve only been doing this six months? I love this blog and find it so imformative. Thank you for all you do.

    Happy Birthday!!
    Mer

    Reply
  • November 17, 2009 at 1:21 pm
    Permalink

    Happy birthday to you, I had no idea you have only been doing this 6 months, as I only just found you on twitter

    Reply
  • November 17, 2009 at 1:41 pm
    Permalink

    Happy Birthday! I love what you do here Kelly, thank you.

    Reply
  • November 17, 2009 at 10:06 pm
    Permalink

    I look forward to reading what you, my new friend, has written every day. You are doing a great job and I appreciate you for many reasons.
    Love you, sweet friend.

    Reply
  • November 17, 2009 at 10:37 pm
    Permalink

    Kelly, your blog made me all teary-eyed! The fight that you have fought to get to this place in your life is amazing and so difficult and every day is a struggle but I thank you so much for taking us along on your journey and reminding us all every day that we are not alone, that we walk this journey together. Happy 6 month blogaversary!

    Reply
  • November 17, 2009 at 11:41 pm
    Permalink

    Kelly, you have done an amazing job in just six short months! I look forward to your newsletter. Keep up the good work.
    Terry

    Reply
  • November 19, 2009 at 1:37 am
    Permalink

    Kelly, I can`t find your email addy on here, I just wanted to ask you and your readers, how many of you take a sleeping pill to help you sleep at night- thanks viesta

    Reply
    • November 19, 2009 at 8:31 am
      Permalink

      Viesta, the best thing to do right now would be to post the question as a discussion topic on the Facebook page. Then, I can send out a post on FB asking folks to respond. I appreciate you always putting your comments here on the website where more people can see them, but I don’t have a forum set up yet for discussion topics.
      My email is on the about pages. kelly @ rawarrior. com

      Reply
  • August 5, 2016 at 2:31 am
    Permalink

    Its hopeless to try explaining to pple what RA is, i found that when you say Rheumatoid, they seem to be interested til they hear Arthritis then you can actually read their mind. “O its not so bad if its just arthritis” then they not interested anymore. You dont look sick, but no one know the battle you fighting cause you are in constant pain.

    Reply

Leave a Reply

Your email address will not be published. Required fields are marked *

“imaware™

    Welcome to RA Warrior!

    Welcome

    Thanks for visiting this unique site full of information and encouragement to fight Rheumatoid Disease. You'll find hope, humor, and a helpful online community. I'm Kelly & I'll be glad to show you around if you'll click right here.

    Advertisement

    View more gifts at Zazzle.

    Let's Pin Together!

Would You Like Free Email Updates?
Stay in touch with RA Warrior.
We respect your privacy. Your email address will never be shared.