Kelly O'Neill, Author at Rheumatoid Arthritis Warrior | Page 17 of 118

Medscape Symposium Reveals Attitudes #Rheum Patients Encounter

November 25, 2013May 14, 2018 Kelly O'Neill 20 Comments Physician-patient discordance / disagreement, Talking to doctors

Recently, we looked at a new report showing machines used to perform musculoskeletal ultrasound (MSUS) vary considerably in ability to detect inflammation, and warning about the use of MSUS in treatment decisions when the machines are not yet accuracy rated. We know that Patient reported outcome measures (PROMs) predict prognosis in Rheumatoid Disease (RD), but...Continue reading 20 Comments » Read more

What a Wonderful World, and Nobody Knows the Trouble I’ve Seen

November 18, 2013April 17, 2020 Kelly O'Neill 5 Comments Invisible Illness, Rheumatoid arthritis support

Do these two song titles seem to conflict? The former was one of the first songs I ever put (and kept) on my phone. The latter I learned in second grade because my teacher thought every American must know Spirituals. (Hear Louis Armstrong sing below, and Nobody Knows the Trouble I've Seen on YouTube.) Guys, cover your ears....Continue reading 5 Comments » Read more

Could Ultrasound Prevent Rheumatology Patients from Receiving Disease Treatments?

November 13, 2013May 14, 2018 Kelly O'Neill 12 Comments Measuring rheumatoid disease activity, musculoskeletal ultrasound (MSUS), Physician-patient discordance / disagreement

This is the 10th in a series on musculoskeletal ultrasound use in people living with Rheumatoid Disease (PRD). This is a critical topic for PRD that could have enormous impact on clinical care – positively or negatively – in light of results from two recent studies. Musculoskeletal ultrasound can help “see” invisible disease activity Musculoskeletal ultrasound (MSUS)...Continue reading 12 Comments » Read more

25 Tips to Stay Well in Cold and Flu Season

November 11, 2013May 14, 2018 Kelly O'Neill 21 Comments Preventive Care with Rheumatoid Arthritis, Tips for living with Rheumatoid Arthritis

This post is a response to questions about how to navigate cold and flu season with Rheumatoid Disease (RD). Flu shots are now center stage at grocery stores and pharmacies across the US. According to the CDC (Centers for Disease Control and Prevention), flu season can begin as early as October. There’s plenty of advice about...Continue reading 21 Comments » Read more

PCORI, Is It Worth It to Include Patients?

November 9, 2013May 14, 2018 Kelly O'Neill 6 Comments e-patient, Patient advocacy, PCORI

The patients who read this blog are like dear brothers and sisters to me. I’ve met many in person and it’s like a family reunion. The RAW website and blog obviously speak to others as well – lay and professional caregivers, rheumatology industry, and sometimes the larger patient engagement movement. We’re working hard for change...Continue reading 6 Comments » Read more

10 Misconceptions About Chronic Disease Many People Believe

November 8, 2013May 14, 2018 Kelly O'Neill 55 Comments Communicating about RA, Invisible Illness, Rheumatoid Arthritis awareness

You can’t understand illness by just looking at a person Very soon after being diagnosed with RA, I learned that most people have beliefs about chronic illness that are hard to overcome. When one neighbor, friend, and family member after another dismissed me, I did the same thing most people with Rheumatoid Disease (PRD) do: I...Continue reading 55 Comments » Read more

We Must Celebrate! Your Voice Was Heard, Despite My Limitations

November 4, 2013April 20, 2019 Kelly O'Neill 26 Comments American College of Rheumatology, Communicating about RA, Patient advocacy, Rheumatoid Patient Foundation

Months – actually years – of my life went into the last couple of weeks. It’s a peculiar feeling when it all comes together in a moment. While there are important points to dig into from the annual ACR meeting, we should pause for a moment to reflect on where we are. (A recent Spear...Continue reading 26 Comments » Read more