Kelly O'Neill, Author at Rheumatoid Arthritis Warrior | Page 33 of 118

Red Feet, Frankenstorm, Unexpected Sympathy, and Travel to PCORI Workshop

October 27, 2012May 14, 2018 Kelly O'Neill 5 Comments e-patient, Patient advocacy, Patient reported outcome measure, PCORI

Tiger and I left home for the PCORI conference today in D.C. in spite of the fact that many in the D.C. are evacuating from the area! Schools were closed on the Space Coast due to Hurricane Sandy, dubbed #Frankenstorm. In Florida, Sandy wasn’t as big a deal as the half a dozen other hurricanes we’ve...Continue reading 5 Comments » Read more

New England Compounding Center and Beyond: Medications Warnings and Dangers

October 25, 2012May 14, 2018 Kelly O'Neill 8 Comments Methotrexate, Rheumatoid Arthritis spine

When there are warnings of dangers related to medication, there is greater risk to chronic disease patients for two reasons: First, we may be more likely to use the drugs in question. And second, we are more vulnerable because we have a systemic illness. Several news reports over the past few weeks are especially relevant...Continue reading 8 Comments » Read more

Mascara, Antibodies, and Soup: All I Know about a Disease

October 23, 2012June 10, 2020 Kelly O'Neill 39 Comments Living with chronic illness like RA, Patience & living with RA, Unrelenting RA - Persistent disease

I always thought living off fresh smoothies and homemade soup along with regular exercise would keep me strong. And surely working hard and caring for others makes one too busy for chronic illness. All I know is that I woke up one morning and my toes were pointing out in odd directions because the joints were...Continue reading 39 Comments » Read more

Win a Pentax Camera! While You Spread RA / RD Awareness!

October 20, 2012May 14, 2018 Kelly O'Neill 1 Comment Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

The PRIZES! FIRST Prize: Pentax Optio RS1500 Digital Camera 2 SECOND prizes: one of 2 $25 iTunes Gift Cards The CONTEST! What’s the contest about? For years, people who live with Rheumatoid Disease (PRD) have suffered because of confusion that RA is just a type of arthritis. Extremely low research dollars for RA Need for accommodations in employment situations Lack of understanding...Continue reading 1 Comment » Read more

We’re Warriors So Fighting On Is Just What We Do

October 19, 2012May 14, 2018 Kelly O'Neill 14 Comments e-patient, Patient advocacy, PCORI, Rheumatoid Arthritis awareness, Rheumatoid Patient Foundation

August. We were exhausted and happy after a successful exhibit at the Rheumatology Nurses Society annual meeting. Five minutes later, I realized I was still buried in Rheumatoid Patient Foundation (RPF) projects preparations for the RPF’s next exhibit at the American College of Rheumatology Scientific Meeting in Washington, D.C. in November. And, then the hard drive...Continue reading 14 Comments » Read more

2 steps forward, 1 step back is not a dance move – It’s just life

October 16, 2012May 14, 2018 Kelly O'Neill 2 Comments Professional patient, Profiles in courage with RA

I’m happy to share NINE new onset stories with you! People write to me all the time about how helpful it is to find these when searching for a diagnosis or trying to understand a new diagnosis. They paint a much more accurate picture than the textbooks have so far. Andrea’s Rheumatoid Arthritis story Amanda N.’s Rheumatoid...Continue reading 2 Comments » Read more

The End of the Methotrexate Shortage, Thanks to Pfizer?

October 13, 2012May 14, 2018 Kelly O'Neill 21 Comments Methotrexate, Rheumatoid arthritis treatment

Pfizer addresses U.S. methotrexate shortage that hurts RA patients Earlier this year the FDA approved an abbreviated new drug application, securing Pfizer’s right to sell injectable methotrexate in the U.S. Recently, Pfizer says they began shipping to customers. This move by Pfizer addresses an urgent shortage of methotrexate in the U.S. that has affected many Rheumatoid...Continue reading 21 Comments » Read more