RAWarrior News Flare: Invisible Illness Week & ACR 2010 | Rheumatoid Arthritis Warrior

RAWarrior News Flare: Invisible Illness Week & ACR 2010

a waterfall of news = more to come“News flare” just always seems more appropriate than news flash. There’s some big news for the blog this week. News for the blog is news for all of us since the Rheumatoid Arthritis Warrior blog represents the viewpoint of the patient living with the invisible illness of RA and the similar autoimmune rheumatoid diseases.

It’s Invisible Illness Week

Invisible Illness Week is the creation of Lisa Copen of Rest Ministries. Many health blogs are discussing invisible illnesses like Rheumatoid Arthritis this week. There will also be a week of panel discussions on Blog Talk Radio which are broadcast online. Blog Talk Radio is a call-in format. Yours truly will be participating Wednesday, but please check the link for great speakers all week long.

The Blog Goes to the Meeting of the American College of Rheumatology

I will be taking the blog to the ACR meeting November 6-11 in Atlanta. I plan to attend as many sessions as possible as a member of the media.

Important links:

Kelly Young

Kelly Young is an advocate providing ways for patients to be better informed and have a greater voice in their healthcare. She is the president of the Rheumatoid Patient Foundation. Kelly received national acknowledgement with the 2011 WebMD Health Hero award. Through her writing, speaking, and use of social media, she is building a more accurate awareness of Rheumatoid disease aka Rheumatoid Arthritis (RA) geared toward the public and medical community; creating ways to empower patients to advocate for improved diagnosis and treatment; and bringing recognition and visibility to the Rheumatoid patient journey. In 2009, Kelly created Rheumatoid Arthritis Warrior, a comprehensive website about RA of about 950 pages and writes periodically for other newsletters and websites. Kelly served on the Mayo Clinic Center for Social Media Advisory Board. There are over 42,000 connections of her highly interactive Facebook Fan page. She created the hashtag: #rheum. Kelly is the mother of five, a home-schooler, Bible teacher, NASA enthusiast, and NFL fan. You can also connect with Kelly by on Twitter or YouTube, or LinkedIn. She has lived over nine years with unrelenting Rheumatoid disease. See also https://www.rawarrior.com/kelly-young-press/

9 thoughts on “RAWarrior News Flare: Invisible Illness Week & ACR 2010

  • September 14, 2010 at 11:35 am
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    I’m so thrilled you will be participating on our parenting panel! And so happy for you to be going to the conference for rheumatology. glad to know we have people like you collecting information for us as well as reporting on the overall tone of it all!

    Reply
  • September 14, 2010 at 2:37 pm
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    Thanks to all, like yourself,Kelly, and Lisa Copen that are doing what they can to advocate for those with RA, and other invisible illnesses.

    Reply
    • September 15, 2010 at 1:37 pm
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      Thank you Julie. Isn’t it better to know we aren’t alone?!

      Reply
  • September 15, 2010 at 12:45 pm
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    Kelly- you are such an asset to the RA community. Thank you for attending the conference on behalf of all of us who can not. I am thankful to have someone like you tirelessly working to promote the truth about RA.

    Reply
  • September 15, 2010 at 3:40 pm
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    Kelly, I am very proud of the recognition you have gotten that you so deserve and grateful for all your effort and support for RA Warriors. You are appreciated every day.

    Reply
  • September 26, 2010 at 7:54 pm
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    Kelli – I live in a town just outside Atlanta. Can’t attend the meetings, but would LOVE to get together with you while you are here. I’ve had sero-positive RA for about 6 years, now, but one internist I used to go to thought I had a “simmering” case of sero-negative RA for nearly 25 years before I was actually diagnosed. No visible joint destruction, but lots of pain and incredible fatigue. I really identified with your description of going to the grocery. All I can say is “thank GOD for the electric carts most groceries have, now!” I won’t go to one that doesn’t. If we can get together, one of my grandsons will probably be along to push my wheelchair. Why the dickens Medicare and Medicare supplements can’t get it through their heads – I don’t need a wheelchair in the house at the moment. I need a scooter to use outdoors and at malls and at groceries, etc. Without one, I’m almost totally confined to the house!

    Anyway, let me know. You can reach me at: ewriggs@yahoo.com.
    Cheerio!
    Elizabeth

    Reply
    • September 27, 2010 at 11:49 am
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      Elizabeth, emails cannot get thru. I used your spam blocker 3 times. Can you add me to your email list?

      Reply

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