Communicating about RA Archives | Page 6 of 7 | Rheumatoid Arthritis Warrior

“25 Years in Arthritis” – an Article on Rheumatoid Arthritis by ABC News

January 29, 2010May 17, 2018 Kelly O'Neill 45 Comments Communicating about RA, Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem

The RA Public Relations war Last week, ABC News’ RA article “25 Years in Arthritis: New Treatments, New Hope” came across my screen. I’m always looking to see how the media presents Rheumatoid Arthritis. Is it a chronic incurable disease? Or is it a minor annoyance best treated by exercise and a good attitude, as was...Continue reading 45 Comments » Read more

The Problem with Rheumatoid Arthritis Information: Why is RA so hard to study and cure?

December 28, 2009May 17, 2018 Kelly O'Neill 12 Comments Communicating about RA, Research on Rheumatoid Arthritis, Rheumatoid arthritis remission, Unrelenting RA - Persistent disease

I guess YouTube is not the best place for RA information There sure are a lot of YouTube videos with RA cures. I watched several this weekend, getting distracted while doing research. Several thoughts competed in my mind: “No wonder _________ (fill in the blank with whoever’s name) thinks I’m crazy for taking RA medicines if she’s...Continue reading 12 Comments » Read more

20 Things Not to Say to a Rheumatoid Arthritis Patient

November 30, 2009May 17, 2018 Kelly O'Neill 321 Comments Communicating about RA, Humor with RA

A list of things not to say to a Rheumatoid Arthritis patient Another kind of Rheumatoid Arthritis Treatment: how people treat RA... Imagine treating a broken arm with a band-aid. How would it be if a heart attack were treated like the flu? What about telling someone with breast cancer to just go on a diet? Crazy. However,...Continue reading 321 Comments » Read more

5 Ways We Can Spread Awareness of Rheumatoid Arthritis

September 29, 2009May 17, 2018 Kelly O'Neill 11 Comments Communicating about RA, Rheumatoid Arthritis awareness, Transparency & living with RA

What is Rheumatoid Arthritis? “Will people ever understand that the autoimmune disease Rheumatoid Arthritis is not the same thing as Gramma’s arthritis?” I have read numerous remarks recently that sound like this. They say: “Impossible. It is impossible for people without RA to understand what RA actually is.” It can be discouraging. I understand the exasperation. However, building a...Continue reading 11 Comments » Read more

Woman’s Day Reply to Rheumatoid Arthritis Comments

August 28, 2009May 17, 2018 Kelly O'Neill 17 Comments Communicating about RA, Invisible Illness, Rheum Disease in the Media, Rheumatoid Arthritis awareness, Woman's Day problem

Many have been asking about me Woman’s Day magazine’s RA article... Here’s what happened. On July 15, I gave my sincere response to a one page article in Woman’s Day on Rheumatoid Arthritis. Many of you responded to the online version of that same article with comments that were intelligent and straightforward. Some of those comments were...Continue reading 17 Comments » Read more

If You Do Not Have Rheumatoid Arthritis, Please Read This

July 13, 2009May 17, 2018 Kelly O'Neill 38 Comments Communicating about RA, Rheumatoid Arthritis awareness, Transparency & living with RA

What I would tell those who are not living with Rheumatoid Arthritis A Memo to Non-RA'ers: My mailbox stays full of “nobody gets it” messages. People feel lonely and frustrated because most people don’t get Rheumatoid Arthritis. No, I mean they don’t “get it” as in understand what it is like. Recently, we discussed the UK campaign...Continue reading 38 Comments » Read more