Patient reported outcome measure Archives | Page 2 of 2 | Rheumatoid Arthritis Warrior

A Paradigm Shift in Rheumatoid Arthritis Disease Activity? Part 3

In Part 1, we pointed out that patients and clinicians look at Rheumatoid Arthritis disease activity in different ways. Rheumatologists especially focus on joints, and actually particular kinds of joint activity. Patients face much more with regard to disease activity, as reflected in the post and comments page. In Part 2, we looked at two specific...Continue reading      59 Comments » Read more

Evidenced-based Medicine or Easy-bake Oven: Tension Between Evidence and Reality

This post was inspired by the article Patient Advocates: Flies in the Ointment of Evidenced Based Care by Jessie Gruman at Health Affairs Blog. Patient advocacy and evidenced-based medicine are both intimately entwined with several matters in rheumatological care, but first a word about flies. Patient advocates probably are flies in the ointment, and there would...Continue reading      35 Comments » Read more

Measuring Rheumatoid Arthritis Disease Activity

Did you ever go to the store for milk and bananas? And come home with frozen pizza and ice cream? Sometimes I spend a couple of hours looking for something and discover something else that’s worth bringing back to you. That’s how I found this ten year old article about the dilemma of measuring Rheumatoid...Continue reading      23 Comments » Read more

Weight of Patient Reported Outcome Measures on Diagnosis & Treatment of RA

Rheumatoid Arthritis Is the Only Major Disease in Which the Patient Largely Informs the Doctor A funny thing happened while we were at a poster session last week at ACR. The Georgia World Congress Center is like three 4-story shopping malls with a couple of theaters and secondary schools thrown in – it’s big. So, we...Continue reading      19 Comments » Read more

The Value of Patient Reported Outcome Measures of Rheumatoid Arthritis

Are patient reported outcome measures useful for Rheumatoid Arthritis? Unfortunately, pain is invisible. I’ve fantasized that it should have a color so that it could be seen and measured objectively. However, pain is just as invisible as stiffness, weakness, and fatigue – the major symptoms of Rheumatoid Arthritis. How can we measure Rheumatoid Arthritis since its...Continue reading      33 Comments » Read more

Would Relying on Patient Generated Data Make a Difference?

Discrepancy between patient generated data and clinician reported data Recently on the blog, I mentioned an oft-quoted study which suggests that the disease course for Rheumatoid Arthritis is becoming milder. Something puzzled me at the end of the report. The researchers noticed that Rheumatoid Arthritis patients’ ratings of their disease activity were opposite to that of...Continue reading      10 Comments » Read more

How Much Does Patient Testimony Matter?

A story about patient testimony In this blog, I’m going do something I don’t often do: use personal patient testimony to illustrate a point. Today, I took my teenage son to a new ear, nose, and throat (ENT) doctor. My son’s ENT history was interesting to the doctor.  Reliving the story today was poignant. As an infant, my...Continue reading      19 Comments » Read more

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