Posts Tagged ‘Communicating about RA’
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20 Replies to Things Not to Say to a Rheumatoid Patient
Every day, I talk with several Rheumatoid patients, and hear from many more. Today’s post is in response to a request from one dear reader about one of the most popular posts on the blog, 20 Things Not to Say to a Rheumatoid Arthritis Patient with 2,640 likes as of tonight. “I love this post. [...]
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Lipstick & Luck: Feeling Fabulous with Rheumatoid Autoimmune Disease
If we try, will we feel fabulous with Rheumatoid Arthritis? Feeling and looking fabulous with RA sells well, but how much can lipstick help? Most people living with Rheumatoid Arthritis have felt the sting of someone suggesting we don’t need to be as sick if we would only try _____. Hearing this can seem harsh, [...]
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When Rheumatology Is Sexy
If medicine can be sexy the way a new car or an iPhone is, what about rheumatology? Is there anything desirable or exciting there? Possibly, according to rheumatologist Ronan Kavanagh who wrote “The sexiness and cool of rheumatology.” Mostly, rheumatologists examine things that healthy people look away from: disability, deformity, and pain. The father of [...]
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Is That Your Final Answer? …or Replying to Misconceptions
I wrote this post weeks ago when it had just happened. I imagined responses that are usually held back in polite conversation. Am I the only one who does that? What if it were a game show… It was a day filled with misconceptions about RA, and it really bothered me; but I didn’t figure [...]
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By the Way, I Have RA
I have written about the difficulty of disclosing about RA, especially at events like a Mayo Clinic Center Social Media conference. But we haven’t talked much about the other side: When we explain about RA, do people understand? Not so much. In a recent example, I went through three rounds of explanations about why I [...]
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Living with (RA) Rheum Disease Is Already Multitasking
Where have you been girl? As this post goes up, I’m in a chair with an IV getting my second Rituxan IV infusion. It’s hard to write about myself, but I really need to keep you informed about what’s going on. Couldn’t someone else report about it for me? None of my kids were willing [...]
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“Fine Thanks, and You?” and 5 More Stupid Things I Say
1) “Do you want your rubber duck?” The favorite rubber duck has a squeaker which lets water in. Squeezing the water out of that duck brings severe hand pain. Not quite as much as the softer Thomas squeaker toys. (And water also hides in the duck so it has to be squeezed for two days.) [...]
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Patient’s Rebuttal to RA Pain Catastrophizing Claims
Part of me would like to back down. But this pain won’t let me. Is it ironic that I encounter the most cruel RA pain in years at the same time I encounter this argument again about RA pain, catastrophizing, and depression? Relating pain, catastrophizing, and depression to RA Ironically, an article called “Pain, catastrophizing, [...]
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