e-patient Archives | Page 2 of 6 | Rheumatoid Arthritis Warrior

Rheumatoid Arthritis Ruined Her Elbow, But Nothing Could Break Her Hope

Research of an engaged patient rescues her elbow I hope you enjoy this inspiring story of a young woman’s struggle to get the best treatment for her elbow destroyed by Rheumatoid Disease (RD). Carolyn is a brave patient who researched to find a procedure to relieve her pain and restore movement to her elbow. She illustrates...Continue reading      24 Comments » Read more

Happy Birthday RAW! The Day I Could No Longer Stay Silent

This week the British Medical Journal published my article which they titled: Doctors’ understanding of rheumatoid disease does not align with patients’ experiences. But first, today is a very special day. Today begins year five of RAW Four years ago today, RA Warrior was born. I’d been studying, writing, and talking to patients for a few months....Continue reading      35 Comments » Read more

Words of Help From a Friend We’ve Never Met – Until We Do

Isn’t life full of special coincidences? Some even call them “God-incidences.” Circumstances show know that life is not all random, but the right words are often there at the right time – no matter when they were written. A couple of special coincidences occurred in February when I was in Washington. As my friend Leslie and...Continue reading      2 Comments » Read more

Health Data Is Like Yogurt: Full of Possibilities

Show me the data! Enjoy a laugh with this short adaptation of the legendary “Show me the money” scene from Jerry Maguire created by Dr. Eric Topol of Scripps Translational Science Institute. “Show me the money” has become a kind of motto that also reminds me of Wendy’s old “Where’s the beef?” ads. People want to...Continue reading      3 Comments » Read more

What Drives Patients to Get Engaged in Healthcare?

Did you ever forget what you were about to say? Last year when I testified at an FDA advisory hearing, I couldn’t even remember my name. I swear I could feel my heart leaping six inches in front of me. It was unexpected because I’d recited my five-minute speech dozens of times from memory. How...Continue reading      15 Comments » Read more

Red Feet, Frankenstorm, Unexpected Sympathy, and Travel to PCORI Workshop

Tiger and I left home for the PCORI conference today in D.C. in spite of the fact that many in the D.C. are evacuating from the area! Schools were closed on the Space Coast due to Hurricane Sandy, dubbed #Frankenstorm. In Florida, Sandy wasn’t as big a deal as the half a dozen other hurricanes we’ve...Continue reading      5 Comments » Read more
“imaware™
    Advertisement
Would You Like Free Email Updates?
Stay in touch with RA Warrior.
We respect your privacy. Your email address will never be shared.