Posts Tagged ‘Talking to doctors’

  • An Unremarkable Reality: Scans Don’t Lie – or Do They?

    Show me your erosions or else Some of you may remember last year when we met Dr. Shrug who gave my foot an ultimatum: Show me a bone erosion, or no more DMARDs. We only ever saw the doc once (more than enough). It was Dr. Tylenol’s partner, who they scheduled us with since Dr. […]

  • Medscape Symposium Reveals Attitudes #Rheum Patients Encounter

    Recently, we looked at a new report showing machines used to perform musculoskeletal ultrasound (MSUS) vary considerably in ability to detect inflammation, and warning about the use of MSUS in treatment decisions when the machines are not yet accuracy rated. We know that Patient reported outcome measures (PROMs) predict prognosis in Rheumatoid Disease (RD), but […]

  • Inside Story of a Young Person Living with Juvenile Rheumatoid

    Today’s blog is my response to an email from a reader about an appointment with her daughter’s rheumatologist. This family travels for hours to see an expert pediatric doctor in one of the best hospitals in the country. Hi Kelly! I guess when they say all good things must come to an end, IT’S TRUE […]

  • Rheumatoid Arthritis (RA) Treat to Target

    The treat to target (T2T) approach involves defining a treatment goal or “target” and modifying the therapy if the target is not reached. Treating to a target of remission or low disease activity Treat to target (T2T) is an approach to treating Rheumatoid Arthritis / Rheumatoid Disease (RD) that combines aggressive or intensive treatment with […]

  • Do Patients Know Enough to Talk about Medical Topics?

    The e-patient movement The movement for prepared, engaged patients and shared decision-making is international. It is recognized and supported by people in positions of power at many levels. Organizations, think tanks, and government agencies study the movement, often supporting it in an effort to advance care, reduce mortality, and lower costs. It is not patients […]

  • 10 Keys to Treatment for Rheumatoid Arthritis / Rheumatoid Disease

    HOW TO USE THIS TOOL Mouse over the labels on the Tool Chest below to see topics important in health care for people with Rheumatoid Disease (RD) / Rheumatoid Arthritis (RA). Click to read each section of the toolbox. Clicking the small red toolbox takes you to an index of topics. Welcome to the RA […]

  • Shared Decision Making and Rheumatoid Disease (RD)

    <<Back to Toolkit for RD care page Partnering with patients makes sense A good physician helps patients examine options and works alongside them to find that best possible plan of action. Patients are viewed as partners in their health decisions. Both physicians and patients bring expertise to a consultation: Physicians know about medical options, and […]

  • What NOT to Do While Treating People with Rheumatoid Disease (PRD)

    <<Back to Toolkit for RD care page It may sound like a peculiar topic to present to professionals, but this one topic may actually be more useful to you than some others are. What behaviors compromise treatment or suggest to patients that they may not be getting adequate care? In what areas might you have […]

  • What Would the Car Mechanic Say If You Didn’t Look Sick?

    This just doesn’t happen: You take the car to a mechanic and he looks out the window across the showroom and says, “Your car looks fine to me. The paint is still shiny. It’s not very old.” All of our cars are pretty old so the guys at the local Firestone shop know us pretty […]

  • Livedo reticularis diagnosis – she knelt next to me with a medical textbook

    Last week was one of those professional patient weeks, with three doctor’s appointments and a lab visit. “Professional patient” is not something I happily say. It started out in 2009 as a tongue in cheek way to make the most of an annoying phenomenon – spending several whole days per month as a health care […]

  • Inadequate & stupid? No, just a victim of someone’s training

    I don’t know where I’ll find the courage to write this. Some stories – my own or others’ – I’ve saved for a book (I’m working on a couple). At first I think, what will happen if I tell this? Then I realize it must be told, because it’s not my story – it’s the […]

  • Do Not Kiss Me

    Do not kiss me because I have a suppressed immune system… In “Kiss My…” a physician blog in Rheumatology News, Dr. Larry Greenbaum wrote, “I charged him level 5 for taking so much of my time, for bad-mouthing his previous doctors, and for incessant whining.” Noontime Monday I clicked into the Facebook (FB) feed for […]